Health Care: Home Care Experiences of Families With Chronically Ill Children
HRD-89-73
Published: Jun 20, 1989. Publicly Released: Jun 20, 1989.
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Highlights
Pursuant to a congressional request, GAO surveyed and interviewed parents of chronically ill children in 11 states and the District of Columbia, focusing on: (1) the parents' experiences in obtaining the necessary medical and supportive nonmedical services in the home setting; and (2) factors that hindered or eased service delivery.
Recommendations
Recommendations for Executive Action
Agency Affected | Recommendation | Status Sort ascending |
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Department of Health and Human Services | To facilitate the consolidation and publication of information on services for chronically ill children and ensure that case management services are available when needed, the Secretary of Health and Human Services should direct the Office of the Assistant Secretary for Health to take a leadership role in developing necessary policy and program guidance for state maternal and child health (MCH) agencies. Such policy should be aimed at ensuring that: (1) information on providers and services in a given community is consolidated and made available to organizations serving chronically ill children; (2) this information is provided to parents at time of discharge; and (3) case management services are made available to those who need direct assistance. |
The Department of Health and Human Services (HHS) formed nine MCH national centers to assist states. HHS also published financial guides. MCH also published program guidance in June 1990 to implement P.L. 101-239. This guidance addressed the three issues enumerated in the recommendation. Nonfinancial benefits should occur as a result of increased coordination of service.
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Topics
Aid for the disabledChild care programsChildren with disabilitiesHealth care costsHealth resources utilizationHealth services administrationHome health care servicesParentsPatient care servicesChronically ill