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entitled 'Social Security Disability Insurance: SSA Actions Could 
Enhance Assistance to Claimants with Inflammatory Bowel Disease and 
Other Impairments' which was released on May 31, 2005.

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Report to Congressional Committees:

United States Government Accountability Office:

GAO:

May 2005:

Social Security Disability Insurance:

SSA Actions Could Enhance Assistance to Claimants with Inflammatory 
Bowel Disease and Other Impairments:

GAO-05-495:

GAO Highlights:

Highlights of GAO-04-495, a report to congressional committees: 

Why GAO Did This Study:

Advocates for patients with inflammatory bowel disease (IBD) believe 
that the Social Security Administration’s (SSA) process for determining 
eligibility for Disability Insurance (DI) may treat some claimants 
unfairly. As a result, claimants with IBD believe they are likely to be 
denied benefits at the initial decision and reconsideration levels, 
making it necessary for them to appeal to SSA’s hearings level to have 
their claims allowed. This congressionally mandated study focuses on 
(1) how SSA evaluates claims involving IBD to establish disability 
under Title II of the Social Security Act and (2) what unique 
challenges claimants with IBD encounter when applying for DI benefits, 
and what actions, if any, SSA has taken to address these challenges.

What GAO Found:

SSA evaluates DI claims involving IBD just as it does all claims, using 
a five-step sequential evaluation process to determine whether: (1) the 
individual is working and earning an amount exceeding established 
thresholds, (2) the impairment or combination of impairments 
significantly limits a person’s physical or mental ability to perform 
basic work activities, (3) the individual’s impairment meets or equals 
a pre-established list of the medical criteria for impairments 
considered severe enough to prevent an individual from earning wages 
above the established threshold, (4) the claimant can return to 
previous work based on what the individual can still do in a work 
setting despite physical or mental limitations, or his or her “residual 
functional capacity,” and (5) the claimant can do any work in the 
economy. As claims move through the five-step process, their assessment 
requires additional evidence and increasingly complex judgments on the 
part of adjudicators. For example, at step three, claimants with IBD 
who are diagnosed with Crohn’s disease would meet the medical criteria 
if their weight fell below the minimum on SSA’s weight table. In 
contrast, to determine the residual functional capacity of claimants 
with IBD at steps four and five, SSA adjudicators must assess 
claimants’ mental and physical capacity and make judgments regarding 
allegations of pain and fatigue. Adjudicators at the initial, 
reconsideration, and hearings levels use the same five-step process, 
although differences exist between the levels that may affect 
decisions. For example, claimants may be represented by an attorney or 
nonattorney at the hearings level.

While claimants with IBD are somewhat less likely to be allowed DI 
benefits than claimants with other impairments, their experiences 
applying for disability benefits are not unique, and SSA has efforts 
under way that may address some claimant concerns. When we analyzed DI 
decisions in 2003 by decision-making levels, we found that claimants 
with IBD, like many others, experienced lower allowance rates at the 
initial and reconsideration levels compared to the hearings level, 
although the difference between the levels was more pronounced for 
claimants with IBD. Lower allowance rates at the initial levels and 
higher allowance rates at the hearings level may reflect challenges 
that claimants with IBD share with many other claimants in applying for 
disability benefits. For example, both claimants with IBD and other 
claimants are unlikely to be allowed at step five of the process at the 
initial levels but not at the hearings level. SSA is pursuing efforts 
that may address some claimant concerns. For example, the agency is 
currently updating the medical criteria used for many impairments, 
including IBD, and is proposing changes to its decision-making process 
that may improve consistency between decision-making levels. SSA is 
also trying to improve claimants’ understanding of the disability 
claims evaluation process, but lacks assurance that the majority of 
claimants who file in person or over the phone understand and provide 
information critical to SSA’s assessment of their claims as part of 
steps four and five of the process.

What GAO Recommends:

To help ensure that all claimants are informed of and provide SSA with 
information needed to assess fairly how impairments limit claimants’ 
ability to work, GAO recommends that SSA emphasize the types and 
importance of information claimants must submit for their claim. SSA 
agreed with GAO’s recommendations, but thought that some perspectives 
GAO provided on evaluating IBD claims were not relevant, and that GAO’s 
characterization of one finding went too far. In response, GAO 
clarified its treatment of these issues.

www.gao.gov/cgi-bin/getrpt?GAO-04-495.

To view the full product, including the scope and methodology, click on 
the link above. For more information, contact Robert Robertson at (202) 
512-7215 or robertsonr@gao.gov.

[End of section]

Contents:

Letter:

Results in Brief:

Background:

SSA Evaluates IBD Claims Using the Same Evaluation Process as for All 
Claims:

Claimants with IBD and Other Impairments Face Similar Challenges 
Applying for DI, and SSA Efforts May Address Some Claimant Concerns:

Conclusions:

Recommendations:

Agency Comments and Our Evaluation:

Appendix I: Scope and Methods:

Data Sources:

Scope:

Data Reliability:

Methods of Analysis:

Appendix II: Agency Comments:

GAO Comments:

Tables:

Table 1: Comparison of Overall Allowance Rates for IBD versus Other 
Impairments:

Table 2: Allowance Rates for Claimants with IBD versus Other Claimants 
by Decision-Making Level:

Table 3: Allowance Rates for Disability Decisions at Step Three by 
Decision-Making Level:

Table 4: Comparison of Allowance Rates at Step Three for IBD versus 
Other Impairments by Decision-Making Level:

Table 5: Allowance Rates for Disability Decisions at Step Five by 
Decision-Making Level:

Table 6: Types of Comparisons Used in Report for IBD versus Other 
Impairments:

Figure:

Figure 1: Five-Step Sequential Evaluation Process Used at Initial, 
Reconsideration and Hearings Levels to Determine Disability:

Abbreviations:

ADL: activities of daily living: 
ALJ: administrative law judge: 
CCS: Case Control System: 
DDS: Disability Determination Services: 
DI: Disability Insurance: 
IBD: inflammatory bowel disease: 
NAS: National Academy of Sciences: 
RFC: residual functional capacity: 
SGA: substantial gainful activity: 
SSA: Social Security Administration: 
SSAB: Social Security Advisory Board: 
SSI: Supplemental Security Income:

United States Government Accountability Office:

Washington, DC 20548:

May 31, 2005:

The Honorable Charles E. Grassley: 
Chairman: 
The Honorable Max Baucus: 
Ranking Minority Member: 
Committee on Finance: 
United States Senate:

The Honorable Joe Barton: 
Chairman: 
The Honorable John D. Dingell: 
Ranking Minority Member: 
Committee on Energy and Commerce: 
House of Representatives:

The Honorable William M. Thomas: 
Chairman: 
The Honorable Charles B. Rangel: 
Ranking Minority Member: 
Committee on Ways and Means: 
House of Representatives:

In recent years, concerns have been raised that the process the Social 
Security Administration (SSA) uses to determine which claimants are 
eligible for Disability Insurance (DI) benefits may place some 
individuals at a disadvantage for receiving the benefits to which they 
are entitled. For example, advocates have recently stressed that the 
process of qualifying for DI benefits may treat some claimants with 
inflammatory bowel disease (IBD) unfairly. They believe that SSA field 
staff are not familiar with the nature of their illness and that the 
medical criteria used to establish disability for IBD patients do not 
take into account the specifics of their illness, such as its episodic 
and unpredictable nature. As a result, claimants with IBD believe that 
they are likely to be denied benefits at the initial decision and 
reconsideration levels, making it necessary for them to appeal to SSA's 
hearings level to have their claims allowed. This appeal delays the 
receipt of benefits and may require claimants to pay attorney fees. 
These concerns have arisen in spite of efforts by SSA, which manages 
the DI program and paid out $78.2 billion to 7.9 million beneficiaries 
in 2004, to ensure that all claimants are assessed in a consistent 
manner.

Partially in response to these concerns, the Congress passed the 
Research Review Act of 2004 (Pub. L. No. 108-427), which mandated that 
GAO study problems encountered by patients with IBD when applying for 
DI benefits under Title II of the Social Security Act and identify 
possible recommendations to improve the application process for these 
patients.[Footnote 1]

This report will discuss (1) how SSA evaluates claims involving IBD to 
establish disability under Title II of the Social Security Act and (2) 
what unique challenges claimants with IBD encounter when applying for 
DI benefits, and what actions, if any, SSA has taken to address these 
challenges. To determine whether claimants with IBD were in fact 
treated differently than claimants with other impairments, we analyzed 
SSA data on all DI decisions made at three decision-making levels 
(initial, reconsideration, and hearings) in 2003 and compared allowance 
rates for claimants with IBD against those for claimants with other 
impairments.[Footnote 2] We also reviewed a small, nonrepresentative 
sample of cases to better understand how both the claimants and SSA 
documented claims involving IBD. To identify problems IBD patients have 
encountered, we interviewed representatives of IBD patient advocacy 
groups such as the Crohn's and Colitis Foundation of America and the 
Digestive Disease National Coalition. We discussed these issues with 
officials at SSA and selected stakeholders with perspective on this 
issue, such as the National Association of Disability Examiners, the 
National Council of Disability Determination Directors, and the 
National Organization of Social Security Claimants' Representatives. To 
better understand the nature of the impairment and the experiences of 
those in the IBD community who apply for DI, we reviewed literature on 
IBD and SSA's application process and criteria as they pertain to 
claimants with IBD. We performed reliability tests on selected data for 
calendar year 2003 and found the data sufficiently reliable for use in 
this report. We conducted our work between January 2005 and May 2005 
according to generally accepted government accounting standards.

Results in Brief:

SSA evaluates claims involving IBD just as it does all claims, using a 
five-step sequential evaluation process to determine if the claimant's 
impairment or combination of impairments qualifies as a disability 
under Title II of the Social Security Act. For all claims, adjudicators 
establish first that the individual is not working and earning an 
amount exceeding established thresholds (engaged in "substantial 
gainful activity"), and second, whether the impairment(s) significantly 
limits the individual's physical or mental ability to perform basic 
work activities. Then, at step three of the process, the individual's 
impairment(s) is compared to pre-established medical criteria in SSA's 
Listing of Impairments. Listed impairments are considered severe enough 
to prevent an individual from engaging in any gainful activity. For all 
claims, if the severity and duration of the individual's impairment(s)-
-as documented by medical examinations, laboratory results, and other 
required evidence--meet or are equivalent to (equal) the criteria for 
an impairment on that list, the adjudicator would find the individual 
to be "disabled" under SSA's rules and would allow the claim. For 
example, a claimant with IBD who is diagnosed with Crohn's disease and 
whose weight is below the minimum on SSA's weight table would be 
"disabled" under SSA's rules. Claims that do not meet or equal the 
medical criteria move to step four, where adjudicators determine if the 
claimants can do previous work based on their "residual functional 
capacity"; i.e., what they can still do in a work setting despite 
physical or mental limitations, or their "residual functional 
capacity." In assessing the residual functional capacity of a claimant 
with IBD, for example, SSA might assess the claimant's ability to 
stand, sit, and lift, as well as his or her mental capacity, pain, and 
fatigue. If the claimant cannot return to previous work, SSA 
adjudicators move to step five to determine if the claimant can do any 
work in the national economy, based on his or her residual functional 
capacity and the "vocational factors" of age, education, and work 
experience--in addition to residual functional capacity. As claims move 
through the five-step process, the assessments generally require 
additional evidence and involve increasingly complex judgments on the 
part of adjudicators. For example, adjudicators might need additional 
information on daily activities and symptoms, such as fatigue, for 
claimants with IBD whose impairment(s) does not meet or equal the 
medical criteria of one of SSA's listed impairments. The adjudicators 
will weigh this information along with medical evidence to assess how 
claimants' impairments might limit their ability to function in a work 
setting. Adjudicators at the initial, reconsideration, and hearings 
levels use the same five-step process, although other differences exist 
between the decision-making levels that may affect how adjudicators 
decide on claims. For example, claimants may introduce new evidence and 
allegations at each stage of the appeals process and are more likely to 
be represented by an attorney or nonattorney during an appeal.

While claimants with IBD are somewhat less likely to be allowed than 
claimants with other impairments, their experiences applying for 
disability benefits are not unique relative to others, and SSA has 
several efforts under way that may address some claimant concerns. When 
we analyzed disability decisions made in 2003 for all decision-making 
levels combined, we found that claimants with IBD had a somewhat lower 
overall allowance rate than that of all other claimants (33 percent 
versus 39 percent). When we made this same comparison for each decision-
making level separately, we found that, much like for other claimants, 
the allowance rate for claimants with IBD was lower at the initial and 
reconsideration levels compared to the hearings level, although the 
difference in allowance rates between levels was greater for claimants 
with IBD. Lower allowance rates at the initial and reconsideration 
levels and higher allowance rates at the hearings level may reflect 
challenges that claimants with IBD share with many other claimants in 
applying for disability benefits. For example, both claimants with IBD 
and many claimants with other impairments are less likely to be allowed 
at step five of the process at the initial and reconsideration levels, 
but more likely to be allowed on this basis at the hearings level. SSA 
is pursuing efforts that may address some of the concerns of 
individuals with IBD and other claimants. For example, the agency is 
currently updating its Listing of Impairments, including the listings 
for IBD, and is taking into account the views of the public in so 
doing. The agency is also proposing changes to its decision-making 
process that may improve consistency between the initial and 
reconsideration levels and the hearings level. SSA has also taken steps 
to improve all claimants' understanding of the disability claims 
evaluation process. However, the agency's recently developed 
"Disability Starter Kit" and other information available to the 
majority of claimants who apply for benefits in person or over the 
phone do not explain the types and importance of information needed to 
assess claims at steps four and five of the process.

GAO is making several recommendations in this report to the 
Commissioner of Social Security that will help ensure that claimants 
with IBD and other claimants are made aware early in the process of the 
types and importance of information claimants must provide with their 
application. In commenting on the draft of this report, SSA agreed with 
our recommendations but also expressed some concerns. For example, SSA 
stated that our report discussed two issues the agency considered 
irrelevant to our study of DI claimants with IBD--listings for 
impairments other than IBD, and the decline in DI allowances based on 
medical criteria. We modified the text to address some of the agency's 
concerns, but we believe that a discussion of both of these issues is 
relevant because it provides perspective on whether claimants with IBD 
are treated differently than claimants with other impairments.

Background:

DI is the largest federal program providing cash assistance to people 
with disabilities. Established in 1956, DI provides monthly payments to 
workers with disabilities (and their dependents or survivors) under the 
normal retirement age who have enough work experience to qualify for 
disability benefits.[Footnote 3] The Social Security Act defines 
disability as the inability to engage in any substantial gainful 
activity by reason of any medically determinable physical or mental 
impairment(s) (hereafter simply referred to as "impairment") which is 
expected to result in death or which has lasted or can be expected to 
last for a continuous period of not less than 12 months.[Footnote 4]

IBD encompasses two chronic autoimmune diseases of the intestinal 
tract: ulcerative colitis and Crohn's disease. The two diseases are 
often grouped together as IBD because of their similar symptoms, but 
each disease has very different surgical options, and may be treated 
with a spectrum of diverse medications. Common symptoms of IBD include, 
but are not limited to: abdominal pain, weight loss, fever, rectal 
bleeding, skin and eye irritations, fatigue, and diarrhea. IBD is 
characterized by intervals of active disease, or "flares," and periods 
of remission. Although it is estimated that as many as one million 
Americans suffer from a form of IBD, most people with IBD are able to 
work, and few apply for DI benefits. In 2003, less than 1 percent of DI 
decisions (nearly 7,000) involved IBD patients.

To obtain DI benefits, a claimant must provide information through an 
application and adult disability report[Footnote 5] filed on line, in 
an interview by telephone, or in person at a Social Security office. 
For claims taken by phone or in person, SSA field staff are responsible 
for assisting the claimant in filling out the application form and the 
adult disability report with complete information and for noting any 
relevant information about the claimant observed during the interview.

If the claimant meets the nonmedical eligibility criteria, the field 
staff forwards the claim to the appropriate Disability Determination 
Services (DDS) office. DDS staff--generally a team comprising a 
disability examiner and a medical consultant and, sometimes, a 
vocational specialist--review the claimant's medical and other 
evidence, obtaining additional evidence as needed to assess whether the 
claimant's impairment satisfies program requirements, and make the 
initial disability decision. If the claimant is not satisfied with this 
decision, the claimant may request a reconsideration of the decision 
within the same DDS.[Footnote 6] Another DDS team will review the 
documentation in the case file, as well as any new evidence the 
claimant may submit, and determine whether the claimant meets SSA's 
definition of disability.

If the claimant is not satisfied with the reconsideration 
determination, he or she may request a hearing before an administrative 
law judge (ALJ). The ALJ conducts a new review of the claimant's file, 
including any additional evidence the claimant submitted after the DDS 
decision. At a hearing, the ALJ may hear testimony from the claimant, 
medical experts on the claimant's medical condition, and vocational 
experts regarding whether the claimant could perform work he or she has 
done in the past or could perform other work currently available in the 
national economy. The majority of claimants are represented at these 
hearings by an attorney or other representative.[Footnote 7]

SSA has faced long-standing problems in administering this complex, 
multilevel decision-making process. These problems center around a 
process that can be confusing and unwieldy, with many applicants 
appealing and waiting a long time for a final disability decision. In 
addition, many within and outside of SSA have long believed that 
differences between the adjudication levels might cause inconsistencies 
in decision making, in turn resulting in too many claims being 
initially denied and then allowed upon appeal and delaying the time it 
may take for some deserving claimants to receive a final agency 
decision. Concerned with the length of time it takes disability 
claimants to receive a final agency decision, SSA has cited "improving 
service in its disability programs" as one of its highest priorities 
and established "making the right decision in its disability process as 
early as possible" as one of its strategic objectives.

SSA Evaluates IBD Claims Using the Same Evaluation Process as for All 
Claims:

SSA evaluates claims involving IBD just as it does all claims, using a 
sequential evaluation process to determine if the claimant's impairment 
qualifies as a disability under SSA's definition.[Footnote 8] This 
process--which is used at all adjudication levels--consists of five 
distinct steps, wherein the claimant's employment status, medical 
condition, and functional limitations are considered. Figure 1 below 
gives an overview of how a claim moves through the five-step evaluation 
process.

Figure 1: Five-Step Sequential Evaluation Process Used at Initial, 
Reconsideration and Hearings Levels to Determine Disability:

[See PDF for image]

[End of figure]

The first two steps of SSA's evaluation process allow SSA to screen out 
cases where the claimant clearly does not meet SSA's definition of 
disability. In step one, field staff determine whether the individual 
is engaged in substantial gainful activity.[Footnote 9] If so, the 
individual does not meet the definition of disability and the claim is 
denied. If not, the claim moves to step two, and is forwarded to the 
DDS office, where the adjudicator obtains medical and other evidence 
and considers the severity of the impairment. If the impairment does 
not significantly limit the person's physical or mental ability to 
perform basic work activities, the impairment is considered not severe 
and the claim is denied. For example, a diagnosis of IBD alone is not 
sufficient; the condition must be severe, i.e., it must limit the 
person's ability to perform basic work activities, for the claim to be 
considered further. If the impairment is severe, the claim moves to 
step three.

At step three, the impairment is evaluated to see if it meets or equals 
in severity the medical criteria in SSA's Listing of Impairments (the 
listings). The listings describe impairments considered severe enough 
to prevent an individual from engaging in any gainful activity. If the 
severity and duration of the claimant's impairment, as documented by 
medical examinations, laboratory results, and other evidence meet the 
criteria of a listing or is equivalent in severity to a listing, the 
claim is allowed. For a claimant with IBD, there are different ways of 
meeting or equaling the medical criteria. For example, a claimant 
diagnosed with Crohn's disease whose weight is below the minimum weight 
on SSA's established weight tables would be allowed.

For all claimants, if the impairment does not meet or equal the 
criteria of a listing, the adjudicator must assess the claimant's 
"residual functional capacity" (RFC) to determine what an applicant can 
still do, despite physical and mental limitations, in a regular full- 
time work setting. The claim then moves to step four, where the 
adjudicator determines whether the claimant has the RFC to do any past 
relevant work. Assessing physical RFC requires adjudicators to judge 
individuals' ability to physically exert themselves in a variety of 
activities (such as sitting, standing, walking, lifting, carrying, 
pushing, and pulling) and to perform manipulative or postural functions 
(such as reaching, handling, stooping, and crouching). Assessing mental 
RFC requires adjudicators to judge, for example, the individual's 
ability to understand, remember, and carry out instructions and to 
respond appropriately to people and changes in work situations. Some 
IBD claims include allegations of pain and fatigue, which may greatly 
affect the claimant's RFC. Because these factors cannot be measured, 
the adjudicator may need to assess the "credibility" of the claimant's 
allegations by comparing such conditions or symptoms to other evidence 
in the file. If the adjudicator determines that in spite of the 
impairment, the claimant's RFC permits him or her to return to previous 
work, the claim is denied.

On the other hand, if the adjudicator determines that the claimant's 
RFC does not permit him or her to return to past relevant work, the 
claim moves to step five, where the adjudicator determines whether the 
claimant could do any other work in the national economy, based on the 
claimant's RFC and the vocational factors of age, education, and work 
experience. To do this, the adjudicator uses a complex system of rules 
set out in SSA's regulations, including a grid of medical and 
vocational factors that provides guidance for decision making. There 
are three grid tables, which are based only on exertional limitations 
(sedentary, light, and medium), and each table provides a variety of 
combinations of age, education, and work experience. If, despite the 
claimant's impairment and other factors, the grid indicates that there 
are jobs the claimant could do, the claimant would be denied; likewise, 
if the grid indicates that the claimant cannot do other work, the 
claimant would be allowed. However, for the majority of disability 
decisions, the grid is used only as guidance, because many claimants 
have limitations that the grid does not capture. For example, severe 
diarrhea necessitating frequent or extended trips to the bathroom may 
greatly reduce the productivity of claimants with IBD without 
necessarily causing any exertional limitations.

At any point after step one of the sequential evaluation, if the 
medical evidence initially provided by the claimant or obtained by the 
DDS is insufficient, the adjudicator may re-contact the claimant's own 
doctors or request a "consultative examination" paid for by SSA. If 
necessary--for example, for conditions or symptoms that are difficult 
to document or measure--the adjudicator may ask the claimant to provide 
more information by, for example, filling out a pain or fatigue 
questionnaire, or an activities of daily living (ADL) form. To 
corroborate a claimant's allegations of functional limitations, the 
adjudicator may ask third parties, such as friends or relatives, about 
the claimant's ability to perform various tasks in their daily lives. 
For a claimant with IBD, for example, the adjudicator may need such 
additional information to corroborate allegations of severe pain, 
fatigue, or diarrhea.

Each step of the sequential evaluation process may require adjudicators 
to obtain and consider more and different types of evidence and to make 
increasingly complex judgments. For example, at the first step, only 
the amount of earnings is needed. In contrast, at steps four and five, 
adjudicators must evaluate medical evidence along with nonmedical 
evidence, including the claimant's activities of daily living and past 
work experience. In addition, the adjudicator may need to make 
difficult assessments of subjective factors, such as the claimant's 
physical or mental capacity with respect to a variety of settings and 
situations, the weight to place on treating source opinions, and the 
claimant's credibility with respect to allegations of pain, fatigue, 
and other symptoms.

While the five-step evaluation process is the same at all levels, there 
are differences between the decision-making levels that can affect how 
adjudicators make decisions on cases. For example, a report by the 
Social Security Advisory Board (SSAB) in 2001[Footnote 10] identified 
some fundamental differences in the decision-making process between the 
DDS and hearings levels that could potentially affect the overall 
consistency of disability decision making between the two levels, 
including the following:

* Most DDS decisions are made without a face-to-face contact with the 
claimant, while the claimant typically appears at an ALJ hearing.

* Attorneys and other representatives are typically involved at the 
hearings level, but not at the DDS levels.

* The law allows claimants to introduce new evidence and allegations-- 
of either new impairments or worsening of prior impairments over time-
-at each stage of the appeals process.

* Different quality assurance procedures are applied to the DDS-and 
hearings-level decisions.

Claimants with IBD and Other Impairments Face Similar Challenges 
Applying for DI, and SSA Efforts May Address Some Claimant Concerns:

While claimants with IBD have somewhat lower allowance rates than other 
claimants, the experiences of these individuals are not unique relative 
to claimants with other impairments. When we compared disability 
decisions for claimants with IBD with those for other claimants, we 
found that much like other claimants, claimants with IBD had lower 
allowance rates at the DDS (initial and reconsideration) levels, but 
higher allowance rates at the hearings level, although the differences 
between levels are more pronounced for claimants with IBD. Allowance 
rates that are lower at the DDS level and higher at the hearings level 
may reflect challenges that claimants with IBD share with other 
claimants. For example, IBD and other claimants face challenges meeting 
or equaling SSA's medical criteria at step three of the process at all 
adjudication levels. In addition, IBD and other claimants are less 
likely to be allowed at step five of the process at the DDS levels 
compared to the hearings level. Also like many other claimants, 
claimants with IBD may not be sufficiently aware of the types and 
importance of information they need to provide to support an allowance 
at step five of the process at the DDS levels. SSA is pursuing efforts 
that may address some of the difficulties encountered by IBD and other 
claimants.

While the Experience of Claimants with IBD Is Not Unique, Their Overall 
Allowance Rate Is Somewhat Lower Compared to Other Claimants:

Our analysis showed that, although the experience of claimants with IBD 
is not unique, they tend to be allowed at lower rates compared to many 
other claimants. For example, when we analyzed overall allowance 
rates,[Footnote 11] we found that claimants with IBD were allowed 33 
percent of the time, whereas all other claimants were allowed 39 
percent of the time. Because impairments with low allowance rates and a 
very large number of claims associated with them, such as hypertension 
or epilepsy, could skew these results, we also calculated individual 
overall allowance rates for IBD and 216 other impairments to determine 
whether they were significantly higher than, lower than, or similar to 
the overall allowance rate for claimants with IBD.[Footnote 12] As 
shown in table 1, while we found that the majority of impairments had 
statistically higher overall allowance rates, many other impairments 
had similar or lower overall allowance rates.

Table 1: Comparison of Overall Allowance Rates for IBD versus Other 
Impairments:

Other impairments compared to IBD: Significantly higher; 
Number of impairments: 122; 
Total decisions: 1,034,956.

Other impairments compared to IBD: Statistically similar; 
Number of impairments: 29; 
Total decisions: 61,941.

Other impairments compared to IBD: Significantly lower; 
Number of impairments: 65; 
Total decisions: 885,633.

Source: GAO analysis.

Notes: Analysis based on SSA DI disability decisions in 2003 at DDS and 
hearings levels.

Impairments are classified as having higher, similar or lower allowance 
rates than IBD, based on results from statistical models that estimate 
the direction, size, and significance of the difference between each 
impairment and IBD. Higher and lower impairments are those whose 
difference from IBD is significant at the .05 level.

[End of table]

When we analyzed allowance rates by adjudication level (DDS versus 
hearings levels), we found that, like many claimants with other 
impairments, claimants with IBD experienced lower allowance rates at 
the DDS and higher allowance rates at the hearings level.[Footnote 13] 
At the same time, we found that the differences between claimants with 
IBD and all other claimants were more pronounced when we analyzed the 
DDS and hearings levels separately than when we combined them. 
Specifically, at the DDS (initial and reconsideration) levels, the 
allowance rate for claimants with IBD was 12 percentage points lower 
than the average allowance rate for all other claimants (see table 2). 
In contrast, at the hearings level, the allowance rate for claimants 
with IBD was 10 percentage points higher than the average rate for all 
other claimants included in this analysis. However, when we computed 
the overall allowance rate, the two levels offset each other, resulting 
in a difference of only 6 percentage points.

Table 2: Allowance Rates for Claimants with IBD versus Other Claimants 
by Decision-Making Level:

Decision-making level: DDS (initial & reconsideration); 
Allowance rate: Claimants with IBD: 22%; 
Allowance rate: Other claimants: 34%; 
Percentage point difference between allowance rates for claimants with 
IBD and other claimants: -12*.

Decision-making level: Hearings; 
Allowance rate: Claimants with IBD: 86%; 
Allowance rate: Other claimants: 76%; 
Percentage point difference between allowance rates for claimants with 
IBD and other claimants: 10*.

Decision-making level: All levels; 
Allowance rate: Claimants with IBD: 33%; 
Allowance rate: Other claimants: 39%; 
Percentage point difference between allowance rates for claimants with 
IBD and other claimants: - 6*.

Source: GAO analysis.

Notes: Analysis based on SSA DI disability decisions in 2003 at DDS and 
hearings levels.

Asterisks indicate differences between claimants with IBD and claimants 
with other impairments that are significant at the .05 level. The error 
associated with the estimated allowance rates for claimants with IBD is 
+/-2 percent or less; the error associated with the estimated allowance 
rates for all other claimants is +/-1percent or less.

[End of table]

There may be legitimate reasons for some of the differences in 
allowance rates between adjudication levels and between claimants with 
IBD and claimants with other impairments at the different levels, but 
pinpointing these reasons through data analysis is difficult. 
Relatively high allowance rates at the hearings level could be due to 
new evidence reflecting new impairments or worsening of alleged 
impairments or the fact that the evidence covers a longer period of 
time, a potentially important factor for individuals with episodic 
impairments like IBD. With respect to variance in allowance rates 
between impairment groups, given the different types and 
characteristics of impairments, it is reasonable that all impairments 
should not necessarily have the same allowance rate, regardless of 
adjudication level. Further, rather than analyzing claims filed in a 
given year and following their outcomes through the various decision- 
making levels, we analyzed data representing decisions at all levels 
for 1 year. As a result, decisions at each level generally involved 
different claimants with varying characteristics (such as age, 
impairment severity, and work history) that influence decisions and 
might account for some of the differences. To analyze whether 
differences in IBD allowance rates by level are legitimate would 
require a much more complex analysis, following a year of applicants 
through the entire process and controlling for many factors that may 
influence the decision-making process. Even with such an analysis, it 
would be difficult to draw firm conclusions because some key data--such 
as detailed information on changes in the claimant's medical condition 
at the different decision-making levels--are not readily available for 
analysis.

Claimants with IBD and Other DI Claimants Encounter Similar Challenges 
in the Evaluation Process:

Lower allowance rates at the DDS and higher allowance rates at the 
hearings level may reflect challenges that IBD and many other claimants 
encounter in SSA's disability evaluation process. For example, many 
claimants do not meet or equal SSA's medical criteria at step three of 
the process, regardless of adjudication level. In addition, claims that 
do not meet or equal the medical criteria at step three and are 
evaluated at steps four and five are less likely to be allowed at step 
five at the DDS than at the hearings level. Finally, claimants may not 
be made sufficiently aware of the importance of documenting how the 
impairment limits their ability to work, information that is critical 
to steps four and five of the evaluation process. This lack of 
documentation may place them at a disadvantage, particularly at the DDS 
level.

Challenges Encountered at Step Three:

Both DI claimants with IBD and many other claimants face challenges 
meeting or equaling SSA's medical criteria at step three of the 
sequential evaluation process when their impairments are evaluated 
according to SSA's medical criteria. Our analysis showed that the 
allowance rate at step three was low (20 percent or less) for claimants 
with IBD, as well as for claimants with other impairments, regardless 
of adjudication level (see table 3).

Table 3: Allowance Rates for Disability Decisions at Step Three by 
Decision-Making Level:

Decision-making level: DDS (initial & reconsideration); 
Allowance rate at step three: IBD: 16%*; 
Allowance rate at step three: Other impairments: 20%.

Decision-making level: Hearings; 
Allowance rate at step three: IBD: 17%; 
Allowance rate at step three: Other impairments: 17%.

Decision-making level: All levels; 
Allowance rate at step three: IBD: 16%*; 
Allowance rate at step three: Other impairments: 20%.

Source: GAO analysis.

Notes: Analysis based on SSA DI disability decisions in 2003 at DDS and 
hearings levels.

Allowance rates at step three were derived by dividing allowances at 
step three by all claims considered at step three. Asterisks indicate 
differences between claimants with IBD and claimants with other 
impairments that are significant at the .05 level. The error associated 
with the estimated allowance rates for claimants with IBD is +/-2 
percent or less; the error associated with the estimated allowance 
rates for all other claimants is +/-1 percent or less.

[End of table]

To further analyze whether claimants with IBD experienced similar 
challenges meeting or equaling SSA's medical criteria at step three 
relative to other claimants, we calculated how many other types of 
impairments had statistically higher, similar, or lower allowance rates 
overall and by adjudication level. As shown in table 4, over 45 percent 
of other impairments had similar or lower allowance rates at step 
three, regardless of adjudication level.

Table 4: Comparison of Allowance Rates at Step Three for IBD versus 
Other Impairments by Decision-Making Level:

Decision-making level: DDS (initial & reconsideration); 
Allowance rates of other impairments compared to IBD: Significantly 
higher; 
Number of impairments: 115; 
Total decisions: 710,132.

Decision-making level: DDS (initial & reconsideration); 
Allowance rates of other impairments compared to IBD: Statistically 
similar; 
Number of impairments: 31; 
Total decisions: 109,838.

Decision-making level: DDS (initial & reconsideration); 
Allowance rates of other impairments compared to IBD: Significantly 
lower; 
Number of impairments: 70; 
Total decisions: 918,970.

Decision-making level: Hearings; 
Allowance rates of other impairments compared to IBD: Significantly 
higher; 
Number of impairments: 48; 
Total decisions: 64,061.

Decision-making level: Hearings; 
Allowance rates of other impairments compared to IBD: Statistically 
similar; 
Number of impairments: 124; 
Total decisions: 36,204.

Decision-making level: Hearings; 
Allowance rates of other impairments compared to IBD: Significantly 
lower; 
Number of impairments: 44; 
Total decisions: 143,325.

Decision-making level: All levels; 
Allowance rates of other impairments compared to IBD: Significantly 
higher; 
Number of impairments: 117; 
Total decisions: 803,653.

Decision-making level: All levels; 
Allowance rates of other impairments compared to IBD: Statistically 
similar; 
Number of impairments: 23; 
Total decisions: 88,237.

Decision-making level: All levels; 
Allowance rates of other impairments compared to IBD: Significantly 
lower; 
Number of impairments: 76; 
Total decisions: 1,090,640.

Source: GAO analysis.

Notes: Analysis based on SSA DI disability decisions in 2003 at DDS and 
hearings levels.

Allowance rates at step three were derived by dividing allowances at 
step three by all cases considered at step three.

Impairments are classified as having higher, similar or lower allowance 
rates than IBD, based on results from statistical models which estimate 
the direction, size and significance of the difference between each 
impairment and IBD. Higher and lower impairments are those whose 
difference from IBD is significant at the .05 level.

[End of table]

Meeting or equaling SSA's medical criteria may be a problem for many DI 
claimants, although the reasons may vary by impairment. Originally, the 
medical criteria were developed as a way to quickly screen the large 
majority of cases that could be allowed on reasonably objective medical 
tests. However, over the years, SSA has experienced a general decline 
in the percentage of DI claims awarded on the basis of meeting or 
equaling the medical criteria at the DDS level, from 82 percent to 58 
percent between 1983 and 2000. There are many factors that may have 
contributed to the decline in allowance rates at step three, including 
advances in medicine that can affect the applicability or usefulness of 
listings, the general aging of the baby boomer generation, the mix of 
impairments over the years, the addition of functional criteria to some 
listings that make it more difficult for claimants to meet or equal the 
listings, changes in or clarifications of SSA policies, and economic 
swings that may affect the number or percentage of claimants with very 
severe disabilities.

In addition, claimants with IBD and other claimants may encounter 
problems meeting or equaling the medical criteria in part because SSA's 
criteria may not be up to date and complete. According to doctors in 
the IBD community, the IBD medical criteria in step three do not 
consider some symptoms of IBD that may prevent a claimant from working, 
such as severe diarrhea. For example, a claimant diagnosed with IBD may 
experience a level and frequency of diarrhea that precludes working, 
but that symptom is not part of the medical criteria for IBD. In 
general, we previously reported that SSA's progress in updating its IBD 
and other medical listings has been slow and may not be keeping pace 
with medical advancements.[Footnote 14] However, we did not determine 
and do not know whether updates to non-IBD listings would improve the 
likelihood of DI claimants meeting or equaling SSA's medical criteria 
at step three of the process.

Challenges Encountered at Steps Four and Five:

Claimants with IBD and others who are evaluated at steps four and five 
of the sequential evaluation process may also encounter challenges 
being allowed at the DDS versus the hearings level. As shown in table 
5, our analysis found that step five allowance rates were higher at the 
hearings level than at the DDS levels for both claimants with IBD and 
claimants with other impairments, but the difference is even greater 
for claimants with IBD.

Table 5: Allowance Rates for Disability Decisions at Step Five by 
Decision-Making Level:

Decision-making level: DDS (initial & reconsideration); 
Allowance rate at step five: Claimants with IBD: 13%*; 
Allowance rate at step five: Other claimants: 25%.

Decision-making level: Hearings; 
Allowance rate at step five: Claimants with IBD: 85%*; 
Allowance rate at step five: Other claimants: 74%.

Decision-making level: All levels; 
Allowance rate at step five: Claimants with IBD: 27%*; 
Allowance rate at step five: Other claimants: 32%.

Source: GAO analysis.

Notes: Analysis based on SSA DI disability decisions in 2003 at DDS and 
hearings levels.

Because only denial decisions are possible at step four, allowance 
rates at step five were derived by dividing allowances at step five by 
all claims considered at steps four and five. Asterisks indicate 
differences between claimants with IBD and claimants with other 
impairments that are significant at the .05 level. The error associated 
with the estimated allowance rates for claimants with IBD is +/-2 
percent or less; the error associated with the estimated allowance 
rates for all other claimants is +/-1 percent or less.

[End of table]

The relatively high allowance rates at step five of the hearings level 
may be due to a number of factors, including the presence of an 
attorney or nonattorney representative at the hearings level or the 
fact that the evidence covers a longer period of time, a potentially 
important factor for individuals with episodic impairments like IBD. As 
noted earlier, each step of the process requires increasingly complex 
judgments by adjudicators, and being represented by an attorney or 
nonattorney who is familiar with SSA's complex rules and decision- 
making process may help claimants better present their cases. A GAO 
report in 2003[Footnote 15] found that claimants who were represented 
by an attorney (or a person who is not an attorney, such as a legal 
aide, relative, or friend) were more likely to be allowed than 
claimants who had no representative. The report also noted three 
possible reasons for the increased likelihood of being awarded benefits 
for those represented by an attorney: attorneys provide assistance with 
the development of evidence over and above SSA's efforts to develop 
evidence; attorneys prepare claimants, to improve their effectiveness 
and credibility as witnesses; and attorneys may screen cases to select 
claimants with strong cases. In 2004, for 68.4 percent of all hearings- 
level decisions, the claimant was represented by either an attorney or 
a nonattorney. In contrast, claimants generally do not acquire 
attorneys or other representation to assist them with filing their 
claims at the DDS levels, although they are allowed to do so.

In the past, SSA and GAO have reported that potential inconsistencies 
between the interpretation and application of standards at the DDS 
levels versus the hearings level might explain higher allowance rates 
at step five at the hearings level.[Footnote 16] For example, GAO 
reported on SSA studies that found that ALJs were more likely than DDS 
adjudicators to find that claimants are credible with respect to 
allegations of pain, fatigue, and other symptoms not identifiable in 
laboratory tests or confirmable by medical observations.[Footnote 17] 
In addition, past SSA studies have found that the different roles that 
medical staff play at the two levels can affect allowance rates at step 
five. Specifically, SSA studies have found that DDS medical staff (who 
generally perform assessments of claimants' RFC themselves) tend to 
find that claimants had higher capacities to function in the workplace 
than ALJs (who may consult with medical experts, but have sole 
authority to make the RFC finding), even when these different 
adjudicators were given the same cases to review.

To help address these inconsistencies, SSA began process unification 
efforts in 1994 to ensure that both levels more consistently 
interpreted and applied SSA's policy guidance. These efforts included 
creating additional policy guidance by publishing rulings and 
regulations to clarify such policy areas as credibility, pain, and the 
weight given to the opinion of the treating physician. However, GAO 
reported in 2004[Footnote 18] that SSA has not adequately assessed the 
impact of its process unification efforts and has yet to perform 
assessments that provide a clear understanding of the extent or causes 
of possible inconsistencies in decisions between adjudicative levels.

Difficulties Understanding the Application Process:

Challenges associated with claimants understanding the application 
process and providing critical information to support their claim, 
particularly at steps four and five, are common among claimants, 
regardless of their impairment. Having complete information to support 
a step five allowance is particularly significant because, according to 
the Social Security Advisory Board,[Footnote 19] the percentage of 
claims allowed at step five has more than doubled, from 18 percent of 
all awards in 1983 to nearly 42 percent in 2000. However, 
representatives of stakeholder groups we spoke with believe that many 
claimants, including those with IBD, may be unaware of the importance 
of including detailed information on how their impairment limits their 
ability to work. In fact, some doctors and officials in the IBD 
advocacy community whom we interviewed believed that if a claimant's 
impairment did not meet or equal the medical listings, the claim would 
be denied. They were unaware of steps four and five in the sequential 
claim evaluation process, where nonmedical factors are considered.

Unless sufficiently prompted by SSA, claimants might not provide enough 
information when they file their claim about how their impairment 
limits their ability to work, which could reduce the likelihood of an 
allowance at step five at the DDS level. In our review of 20 disability 
claim folders for claims decided in 2003, we found that the prior 
version of the adult disability report did not clearly state the 
importance of providing detailed and complete information about how the 
impairment limited the ability to work. In responding to the question 
on the paper disability report then used, some claimants provided only 
minimal information, sometimes just a few words. For example, one 
claimant responded to the question about how his impairment limited the 
ability to work by saying "pain, limited movement." In another case 
that was denied at the initial DDS level, the claimant provided minimal 
information concerning how the impairment limited work activities.

In contrast, the new interactive adult disability report on the 
agency's Web site contains instructions, explanations, and examples 
that assist claimants in filling out the report. For example, in asking 
about how the impairment limits the claimant's ability to work, the 
report notes: "This is one of the most important pages in the report." 
It goes on to explain that, "You can help your case by giving us a 
detailed description of all of your conditions, and any symptoms that 
limit your ability to work. Please do not assume that your condition is 
self-explanatory." The report also provides examples of how to document 
the conditions and symptoms that may limit the ability to work, 
including the type of information and level of detail needed, such as 
"I have trouble concentrating and have become more and more forgetful. 
My friend at work reminds me about important work assignments. Once I 
forgot to take the daily receipts to the bank. Sometimes I can't 
remember how to add or subtract." However, to view the on-line 
instructions, explanations and examples given in the interactive adult 
disability report, a claimant must provide a name and legitimate Social 
Security number, fill out the report, and reach the section asking how 
the impairment limits the ability to work. Further, these more detailed 
instructions and examples are directly available only to those 
claimants who apply on line, which accounts for only about two percent 
of claimants, according to an SSA official. Since the majority of 
applicants apply in person or over the phone, most claimants never see 
this information.

For the majority of claimants who apply in person or over the phone, 
SSA field staff have the option of reviewing and reading to claimants 
examples that illustrate the types and importance of information 
requested. However, the Social Security Advisory Board and others 
believe that field staff lack the time to sufficiently explain program 
rules and procedures so that applicants can understand what items of 
information they need to document their case. SSA does not track, and 
we did not determine, the extent to which SSA field staff read this 
information to claimants applying in person or over the phone.

Brochures and other information are available on line and routinely 
provided by SSA to claimants when they arrange an appointment to file a 
disability claim. SSA provides this information in order to help ensure 
that claimants can gather the information needed and have it available 
when they meet with the claims representative to complete the 
application. However, this information does not explain the type of 
information and level of detail needed if the impairment does not meet 
or equal the medical criteria at step three and the claim must be 
decided at steps four and five. As a result, claimants may not be 
sufficiently informed to give SSA enough information at the time of 
application to support the allegation that their impairment makes them 
unable to work.

Another opportunity exists for the DDS to collect information from 
claimants that is relevant to steps 4 and 5 in the evaluation of the 
initial claim. Specifically, DDS procedures call for the adjudicator to 
request additional information from the claimant, if (1) it is 
warranted based on the disability alleged by the claimant and (2) the 
information is not already in the adult disability report completed by 
the claimant or by field staff for the claimant. Requested information 
might include responses to a pain or fatigue questionnaire or an 
activities of daily living form. Again, SSA does not track, and we did 
not determine, the extent to which this is done.

SSA's Efforts May Address Some Challenges Faced by Claimants with IBD 
and Others:

SSA is pursuing efforts that may address some but not all the 
difficulties encountered by claimants with IBD and other claimants. The 
agency is currently updating the medical criteria used at step three 
for all impairments, including IBD and is taking into account the views 
of the public in so doing. However, SSA officials told us that agency 
rules prohibit the discussion of specific changes prior to their 
publication. The process of updating criteria is lengthy, and the 
updates to the medical criteria for IBD may not be completed until late 
in 2005.

SSA also has broader efforts under way that may affect future changes 
to medical criteria. For example, SSA has begun holding public meetings 
to discuss changes in medical criteria for certain impairments, such as 
mental conditions and immune disorders, including HIV/AIDS. According 
to SSA officials, this approach allows SSA to obtain valuable input 
from outside the agency, prior to the drafting of proposed changes to 
medical criteria. In addition, SSA has contracted with the Institute of 
Medicine, part of the National Academy of Sciences (NAS), to conduct a 
broad review of its medical criteria. This review will study such 
things as developing the process for determining when the criteria need 
to be updated, establishing feedback mechanisms to continuously assess 
and evaluate the criteria, and examining the advisability of 
integrating functional assessment into the criteria.

In addition to changes that affect IBD and other medical criteria, SSA 
has several proposed changes currently under consideration that may 
improve the consistency of decisions between the DDS and hearings 
levels. Specifically, in 2004, GAO reported[Footnote 20] that most SSA 
stakeholders believe the following proposals--announced by the 
Commissioner in 2003--may increase the extent to which DDS and hearings-
level adjudicators arrive at similar decisions on similar cases:

* requiring DDS adjudicators to more fully develop and document their 
decisions;

* changing the quality control process for hearings-level decisions in 
a way that makes it more consistent with that of the DDS level;

* providing both the DDS and the hearings levels with equal access to 
more centralized medical expertise; and:

* requiring ALJs to address agency reports that recommend either 
denying the claim or outlining the evidence needed to fully support the 
claim.

SSA is also trying to improve all claimants' understanding of the 
disability claims evaluation process, through the interactive adult 
disability report and other information available on SSA's Web site. 
SSA's Web site contains information on various aspects of the DI 
program, including the evaluation process, and SSA periodically reviews 
and updates information provided on its Web site. However, except for 
the interactive adult disability report, SSA's Web site does not 
provide claimants with detailed instructions, explanations, and 
examples to assist them with completing the adult disability report.

Moreover, SSA recently developed a Disability Starter Kit, available on 
the Web site and also given to all disability claimants who apply in 
person or by phone, which provides answers to frequently asked 
questions and materials to help them prepare for the disability 
interview. However, the Disability Starter Kit does not include the 
instructions, explanations, and examples available on the interactive 
adult disability report, for describing how an impairment limits the 
ability to work and the importance of providing this information.

Conclusions:

Claimants with IBD believe that SSA tends to initially deny their 
claims, only to allow them at the hearings level, and our analysis of 
2003 DI decisions confirms that most IBD claims are denied at the 
initial level, and a high rate of claims are allowed upon appeal. 
However, we also found that the experience of claimants with IBD is 
much like that of claimants with many other impairments. This situation 
may be due in part to a general shift away from allowing cases at the 
DDS level based on meeting or equaling the medical criteria in the 
listings. This in turn results in more and more cases being assessed at 
step five of the process--a step that involves complex judgments 
concerning the RFC of the claimant and assessments of factors like pain 
and the credibility of the claimant. Past studies have found that 
relative to counterparts at the hearings level, DDS adjudicators have 
been less inclined to find that claimants are credible or cannot 
perform past or other work in the national economy, and therefore less 
likely to allow claimants on these bases at step five of the sequential 
process. Inconsistencies in how adjudicators at different levels make 
decisions may help explain the relatively low allowance rates at the 
DDS levels and high allowance rates at the hearings level for IBD and 
other claimants whose impairments do not fit neatly into SSA's medical 
criteria and generally require adjudicators to perform more complex and 
subjective assessments. SSA has some efforts under way that may address 
some of these issues, but it is too early to gauge success. For 
example, SSA is updating its medical criteria for IBD and other 
impairments, but SSA is unable to discuss any changes prior to 
publication. SSA also contracted with the NAS to conduct a broad review 
of its medical criteria. However, this effort is in its initial stages, 
and the NAS report is not expected until March of 2006. SSA has also 
proposed several changes to its decision-making process that may 
address inconsistencies in how adjudicators at different levels view 
cases. However, as we previously recommended, SSA needs to collect 
better information to help it determine whether problems with 
inconsistency have been resolved.

We also found that SSA's application and claims evaluation process may 
not be well understood by many claimants, and thus some claimants may 
not provide SSA with all the information necessary for their initial 
decisions. SSA's on-line adult disability report provides useful 
instructions, explanations, and examples to the small percentage of 
claimants who actually fill out the report on line. However, that 
information cannot easily be viewed on SSA's Web site and is not 
available in the other materials provided to applicants. Further, for 
the majority of claimants who file in person or on the phone, SSA lacks 
assurance that SSA field staff explain to claimants the types and 
importance of information needed to support a claim assessed at steps 
four and five of the process. As a result, claimants may not be 
providing sufficient information on how their impairments prevent them 
from working, and SSA may be missing the opportunity to gather key 
information for meeting one of its key strategic objectives, that is, 
to make the right decision in the disability process as early as 
possible.

Recommendations:

To help ensure that claimants with IBD and other claimants are informed 
of and ultimately provide SSA with information critical to a complete 
assessment of their impairment at the earliest possible point in the 
decision-making process, SSA should implement the following three 
recommendations:

* Update its Web site to include more accessible information that 
clarifies the type and importance of information that claimants must 
submit for steps four and five of the sequential evaluation process. 
SSA should also consider making the information currently in its 
interactive adult disability report--including instructions, 
explanations and examples--more readily available to all claimants on 
its Web site.

* Update the Disability Starter Kit--which is provided to all claimants 
who apply by phone or in person--to include an explanation of the types 
and importance of information that claimants must submit for steps four 
and five of the sequential evaluation process. SSA should consider 
adding instructions, explanations, and examples that are currently 
available in the on-line form, to the extent that it is cost-effective 
to do so.

* Explore options for ensuring that field office and DDS staff 
appropriately explain and collect the types of information needed to 
assess how claimants' impairments impact their ability to work.

Agency Comments and Our Evaluation:

We provided a draft of this report to SSA for comment. SSA agreed with 
our recommendations. Specifically, SSA agreed with our first 
recommendation and will take the steps necessary to ensure that, at a 
minimum, the information currently available in the interactive adult 
disability report is available to all claimants on the Web site. In its 
response to our second recommendation, SSA said that it would consider 
the inclusion of information and/or instructions along with other 
suggestions to the Disability Starter Kit that would address the 
importance of obtaining information from the disability applicant about 
steps four and five of the sequential evaluation process, taking into 
account factors such as expense and space. SSA agreed with our third 
recommendation and will continue to emphasize and train DDS and Social 
Security employees on the importance of appropriately explaining all 
aspects of the disability process to claimants and ensuring that the 
appropriate information is provided to and received from the claimants.

Although SSA agreed with our recommendations, the agency expressed 
concern with two statements in our report. SSA stated that our report 
discussed issues the agency considers irrelevant to our study of DI 
claimants with IBD--the addition of functional criteria to the listings 
for impairments other than IBD and the decline in DI allowances based 
on medical criteria. To respond to agency concerns, we de-emphasized 
our discussion of functional criteria in the listings by simply 
identifying it as one of many reasons for the decline in allowance 
rates at step three. We also clarified in our "Conclusions" section 
that we were discussing a decline in allowances at step three, rather 
than a decline in allowances based on medical criteria. However, we 
believe that the addition of functional criteria to the listings is 
relevant to our study, as is the decline in allowance rates at step 
three, because they provide perspective on whether claimants with IBD 
are treated differently than claimants with other impairments. SSA also 
expressed concern with how we characterized part of our analysis in the 
"Conclusions" section, and we modified the text in the "Conclusions" to 
be more specific about what our analysis found.

SSA provided additional general comments, which we have included (along 
with our responses to them) in appendix II and addressed in the body of 
our report where appropriate. SSA also provided technical comments that 
we have incorporated in the report as appropriate.

We are sending copies of this report to the appropriate congressional 
committees, the Social Security Administration, and other interested 
parties. We will also make copies available to others on request. In 
addition, the report will be available at no charge on GAO's Web site 
at http://www.gao.gov.

If you or your staff have any questions concerning this report, please 
contact me or Michele Grgich, Assistant Director, at (202) 512-7215. 
You may also reach us by e-mail at robertsonr@gao.gov or 
grgichm@gao.gov. Other major contributors to this assignment were Jill 
D. Yost, Ann T. Walker, Corinna Nicolaou, Daniel Schwimer, Doug Sloane, 
and Shana Wallace.

Signed by: 

Robert E. Robertson: 
Director, Education, Workforce, and Income Security Issues:

[End of section]

Appendix I: Scope and Methods:

To determine whether claimants with IBD were treated differently than 
claimants with other impairments, we analyzed SSA data from 2003 on all 
Disability Insurance (DI) decisions made at three decision-making 
levels (initial, reconsideration, and hearings), and compared allowance 
rates for claimants with IBD to those for claimants with other 
impairments. This appendix describes (1) the sources of the data we 
used, (2) the scope of our analysis, (3) steps we took to ensure data 
reliability, and (4) our methods for analyzing the data.

Data Sources:

We collected information from two sources on all DI decisions made in 
2003 at the three decision-making levels:

* SSA's 831 file (also referred to as the National Disability 
Determinations Services System), which contains an electronic record of 
all initial and reconsideration decisions made at the DDS and:

* SSA's Case Control System (CCS), which contains an electronic record 
of all decisions made at the hearings level.

Scope:

The Research Review Act mandated GAO to study problems encountered by 
patients with IBD when applying for DI benefits under Title II of the 
Social Security Act. Therefore, we limited our data analyses to 
decisions that involved Title II (Disability Insurance or DI) 
claims.[Footnote 21] We restricted our analyses to DI decisions that 
resulted in an allowance or a denial at one of the five steps[Footnote 
22] in the sequential process and excluded cases denied for such 
reasons as lack of cooperation or failure to follow prescribed 
treatment, because such denials are not associated with one of the five 
steps.

Data Reliability:

We determined that the 831 and CCS files were sufficiently reliable 
based on reliability assessments of specific variables and records 
pertinent to our analyses that we had performed for a previous 
report.[Footnote 23] For that report, we reviewed reports by GAO, the 
SSA Office of Inspector General, and SSA contractors on data quality. 
We also interviewed staff responsible for managing and using the data 
to assess the controls and processes in the disability system and 
performed electronic testing of some variables. In addition, for this 
report, we performed the following:

* We reviewed records in the 831 and CCS files representing DI 
decisions made in 2003 to identify missing data for the three variables 
used in this study: impairment, decision, and step of the sequential 
evaluation process (i.e., regulation basis code). We did not find any 
instances of missing data for these three variables.

* We reviewed impairment codes used for 2003 decisions and found 
records that did not indicate a specific diagnosis (e.g., 6490, 
"impairment unknown; insufficient medical evidence"). Because there 
were a large number of records with such impairment codes, we retained 
them in our analyses which compared claimants with IBD with all other 
claimants. After we determined the differences in allowance rates based 
on the total number of decisions regardless of impairment, we conducted 
a second analysis of allowance rates that considered the allowance rate 
for each impairment code. In the second analysis, we used impairment 
codes for which there were 100 or more decisions in 2003, including 
those impairment codes that did not indicate a specific diagnosis.

* We compared decision outcomes with the regulation basis code 
indicating at which step the decision was made, and found cases with 
obvious conflicts between the decision and the step. Specifically we 
found records that were denied at step three (one case) or allowed at 
step four (1,021 cases). The five-step evaluation process does not 
permit denials at step three or allowances at step four, so we excluded 
these records from our analysis. Given the large number of claims 
(approximately 2 million), the error produced by the exclusion of these 
cases is very small.

Methods of Analysis:

In order to determine whether claimants with IBD were in fact treated 
differently than claimants with other impairments, we compared decision 
outcomes in two ways: (1) claimants with IBD versus all other 
claimants, and (2) IBD impairments versus 216 other individual 
impairments.

Claimants with IBD versus All Other Claimants:

To determine the extent to which claimants with IBD were allowed at a 
different rate than other claimants, regardless of impairment type, we 
compared the allowance rate of claimants with IBD to that of all other 
claimants. The allowance rate for IBD was calculated by combining 
decisions for the two IBD impairments--Crohn's disease and ulcerative 
colitis. We then compared the percentage of claims allowed for those 
impairments with the percentage allowed for all other claimants 
combined. We estimated the sampling error associated with these 
percentages, given the size of the samples on which they were based, 
and tested the significance of the difference between them using a 
simple chi-square statistic. The error associated with the estimated 
allowance rate for claimants with IBD is +/-2 percent or less. The 
error associated with allowance rates for all other claimants is +/-1 
percent or less. We tested the significance of the differences between 
claimants with IBD and other claimants using the .05 level of 
significance.

As indicated in table 6 below, a total of nine comparisons were made 
using these calculations. As noted in the table, the denominator for 
step three comparisons included only cases considered at step three 
(i.e., cases that were not denied at steps one and two), whereas the 
denominator for step five included cases considered at steps four and 
five. The reason for the difference is that assessments performed at 
steps four and five are highly inter-related; for example, the RFC 
assessment performed at step four would be used to support a denial at 
either step four or five, or an allowance at step five. As such, it 
seemed appropriate to consider allowances at step five relative to all 
decisions made at steps four and five.

Table 6: Types of Comparisons Used in Report for IBD versus Other 
Impairments:

DDS (initial and reconsideration) level; 
Allowance rate for all steps of the sequential evaluation process: DDS 
allowances divided by all DDS decisions; 
Allowance rate at step three: DDS allowances at step three divided by 
all cases considered at the DDS level at step three; 
Allowance rate at step five: DDS allowances at step five divided by all 
cases considered at the DDS level at steps four and five.

Hearings level; 
Allowance rate for all steps of the sequential evaluation process: 
Hearings allowances divided by all hearings decisions; 
Allowance rate at step three: Hearings allowances at step three divided 
by all cases considered at the hearings level at step three; 
Allowance rate at step five: Hearings allowances at step five divided 
by all cases considered at the hearings level at steps four and five.

Overall (all decision-making levels); 
Allowance rate for all steps of the sequential evaluation process: 2003 
allowances divided by all 2003 decisions; 
Allowance rate at step three: 2003 allowances at step three divided by 
all 2003 decisions considered at step three; 
Allowance rate at step five: 2003 allowances at step five divided by 
all 2003 decisions considered at steps four and five.

Source: GAO.

[End of table]

IBD Impairment versus 216 Other Individual Impairments:

We performed separate analyses to determine whether claimants with IBD 
had an allowance rate that was different from the allowance rates for 
claimants with other impairments, or whether the allowance rate for 
claimants with IBD was higher than for some other impairments, but 
lower for others. We performed this extra step because we did not know 
whether certain impairments might have a large number of records 
associated with them, and therefore might have greatly influenced the 
allowance rates for claimants with impairments other than IBD. This 
additional analysis reveals where claimants with IBD fall in the range 
of allowance rates by impairment, regardless of the number of claims 
associated with each impairment.

The allowance rate for claimants with IBD was calculated as we did in 
the first analysis described above. We used this allowance rate as the 
reference category and employed categorical logistic regression models, 
with 216 dummy variables for the other categories of impairments, to 
test the direction and significance of the difference in allowance 
rates between each of the other impairments and IBD. These models used 
Wald statistics and .05 level of significance to test differences, and 
were able to classify other impairments as having significantly higher, 
statistically similar, or significantly lower allowance rates than IBD.

A total of four comparisons were made by impairment: overall allowance 
rate (all sequential evaluation steps and decision-making levels 
combined), and step three at the DDS, hearings, and combined levels. We 
reported the overall comparison as an extra test of the results of our 
first analysis. We reported comparisons of impairments at step three 
because this step involves an assessment by SSA adjudicators of medical 
criteria by impairment. Although we also compared impairments at step 
five, we did not report the comparison because we found the results to 
be consistent with our analysis of claimants with IBD versus other 
claimants.

[End of section]

Appendix II: Agency Comments:

SOCIAL SECURITY:
The Commissioner:

May 11, 2005:

Mr. Robert E. Robertson: 
Director, Education, Workforce and Income Security Issues: 
U.S. Government Accountability Office: 
Room 5-T-57:
441 G Street, NW: 
Washington, D.C. 20548:

Dear Mr. Robertson:

Thank you for the opportunity to review and comment on the draft report 
"SOCIAL SECURITY DISABILITY INSURANCE: SSA Actions Could Enhance 
Assistance to Claimants with Inflammatory Bowel Disease and Other 
Impairments" (GAO-05-495). Our comments on the report are enclosed.

If you have any questions, please have your staff contact Candace 
Skurnik, Director, Audit Management and Liaison Staff at (410) 965- 
4636.

Sincerely,

Signed by: 

Jo Anne B. Barnhart: 

Enclosures (2): 

COMMENTS ON THE GOVERNMENT ACCOUNTABILITY OFFICE (GAO) DRAFT REPORT 
"SOCIAL SECURITY DISABILITY INSURANCE: SSA ACTIONS COULD ENHANCE 
ASSISTANCE TO CLAIMANTS WITH INFLAMMATORY BOWEL DISEASE AND OTHER 
IMPAIRMENTS" (GAO-05-495):

We appreciate the opportunity to comment on the GAO draft report 
concerning the Social Security Administration's (SSA) actions in 
adjudicating claims for Disability Insurance (DI) benefits filed by 
individuals with inflammatory bowel disease (IBD). We agree with the 
recommendations and commend GAO for doing the work and writing the 
report in so short a time.

However, we do have two relatively major concerns with statements in 
the draft. First, we believe the report should not address general 
listings issues. On pages 16 and 23 of the draft report, the report 
addresses why the proportion of allowances based on the Listing of 
Impairments (the listings) has been falling over the past 20 years 
while the proportion of allowances at step 5 has been increasing. We 
strongly advise that you consider removing these discussions because 
they are not relevant to the study in this report. Further, as the 
report notes, we currently have a contract with the Institute of 
Medicine, National Academy of Sciences, to address this specific issue.

The bulk of the text that addresses this issue repeats the theory that 
the listings have changed from their "original intent" and that there 
has been a "general shift away from allowing cases based on medical 
criteria;" that is, there has been a shift toward using more functional 
criteria in the listings. Even if these assertions were accurate, they 
would not be relevant to the study on IBD because the criteria in the 
listings for IBD--listings 5.06 and 5.07--are in fact solely medical; 
that is, they consist entirely of clinical and laboratory findings. 
Moreover, there has been no shift in the "intent" of the listings 
related to IBD because listings 5.06 and 5.07 have not changed since 
they were published in 1979. For these reasons, even if it were the 
case that other listings had shifted to a more functional basis and 
away from a solely medically based analysis, it would not be true of 
the listings we use to evaluate 11313. Further, the third sentence of 
the conclusion paragraph on page 23 of the draft ("This situation may 
be due in part to a general shift away from allowing cases based on 
medical criteria.") would be clearly erroneous with regard to the IBD 
listings.

Other statements in the draft about the general listings issue are also 
incorrect. For example, one individual believed that the original 
intent of the listings was to match the statutory standard of 
"inability to work" and that the current intent is "inability to 
function," a standard that the individual believed was "much more 
stringent." However, that is not the case. Since 1980, §404.1525(a) of 
our regulations has provided that the listings describe impairments 
that are severe enough to prevent a person from doing "any gainful 
activity," not just "any substantial gainful activity." This is by 
definition a more stringent standard than the statutory definition of 
inability to work. (For a further discussion of this policy and why it 
was not new even in 1980, see the preamble to the publication of the 
1980 regulations, 45 FR 55566, at 55575-55576 (1980).) In any case, the 
discussion of function in the listings appears to shift the report away 
from the Congressional mandate to evaluate issues that claimants with 
IBD face.

Therefore, we recommend that you delete this discussion entirely. 
However, if you still believe that it is necessary to include it, we 
recommend that you do so in a footnote so that readers do not 
erroneously conclude that the discussion of function in the listings 
affects people suffering from IBD.

Second, the analysis in the draft report does not confirm the belief of 
claimants with IBD that they must go to the administrative law judge 
(ALJ) hearing level in order to win their cases. Thus, we question the 
last part of the first sentence of the "Conclusions" section on page 23 
of the draft report: "IBD claimants believe that SSA tends to initially 
deny their claims, only to allow them at the hearings level, and our 
analysis of 2003 DI decisions confirms this." (Emphasis added.) The 
first part of the sentence implies that claimants believe they must go 
to the ALJ hearing level in order to be found disabled. This is 
confirmed by the report on page I that: "As a result, claimants with 
IBD believe that they are likely to be denied benefits at the initial 
decision and reconsideration levels, making it necessary for them to 
appeal to SSA's hearings level to have their claims allowed."

We do not question the report's findings that people with IBD are 
allowed at a lower rate at the initial level and a higher rate at the 
ALJ hearing level. We also take this information quite seriously, and 
we appreciate that the report notes that we are considering public 
input as we revise the IBD listings for final publication in the 
relatively near future. However, the body of the report does not appear 
to support the conclusion that claimants must go to the ALJ hearing 
level in order to be found disabled. Further, we believe the data you 
used do not support this conclusion. The data in the report tell only 
about the relative proportions of people who were allowed in 2003, not 
the numbers of people who were allowed, so they do not appear to 
address this issue at all. However, the underlying data for the 
percentages you report--i.e., the data showing the numbers of people 
who were allowed at each level--show that, of the people with IBD who 
qualified in 2003, the majority were allowed by Disability 
Determination Services (DDS), and that, by far, most of those 
individuals were allowed at the initial level. In other words, most 
people with IBD who were allowed "won" their cases on their first try 
without having to appeal.

Therefore, we believe it is not accurate for the report to say your 
analysis "confirm[ed]" the claimants' belief, and we recommend that GAO 
revise it to more accurately state what the data showed. Also, we note 
that the conclusion section does not refer to the analysis on page 14 
of the draft report, which spells out many of the legitimate reasons 
why there may be differences in allowances rates between adjudication 
levels.

We have the following comments on the GAO recommendations.

Recommendation 1: SSA should update its Web site to include more 
accessible information that clarifies the type and importance of 
information that claimants must submit for steps four and five of the 
sequential evaluation process. SSA should also consider making 
information currently in its interactive adult disability report - - 
including instructions, explanations and examples --more readily 
available to all claimants on its Web site.

Response:

We agree on the importance of providing claimants with complete and 
accurate information about all aspects of the disability process. We 
currently provide links (More Information about Disability and the 
Application Process and How the Disability Application Process Works), 
which provide an explanation of the sequential evaluation process in 
detail and other application processing information under SSA's Online 
Claims and Services web page via the Adult Disability and Work History 
Report. This section of the web site can be further expanded to include 
similar information currently available in the interactive disability 
reports. SSA will take the steps necessary to ensure that, at a 
minimum, the information currently available in the interactive adult 
disability report is available to all claimants on the web site.

Recommendation 2: SSA should update the Disability Starter Kit --which 
is provided to all claimants who apply by phone or in person --to 
include an explanation of the types and importance of information that 
claimants must submit for steps four and five of the sequential 
evaluation process. SSA should consider adding instructions, 
explanations and examples that are currently available in the on-fine 
form, to the extent that it is cost-effective to do so.

Response:

We will consider the inclusion of information and/or instructions along 
with other suggestions to the starter kit that would address the 
importance of obtaining information from the disability applicant about 
steps four and five of the sequential evaluation process, taking into 
account factors such as expense and space.

Recommendation 3: SSA should explore options for ensuring that field 
office and DDS staff appropriately explain and collect the types of 
information needed to assess how claimants' impairments impact their 
ability to work.

Response:

We appreciate the comments and will continue to emphasize and train DDS 
and Social Security employees on the importance of appropriately 
explaining all aspects of the disability process to claimants and 
ensuring that the appropriate information is provided to and received 
from the claimants. Each Regional Office web site currently provides 
access to a "Disability Interview Guide" for the FO claims 
representative (CR). CRs are accustomed to using this resource kit for 
the front-end interview process. The DDS generally submits functional 
reports to applicants which address limitations in activities of daily 
living and symptom questionnaires to further address limitations. We 
recognize the need for (and are now conducting) additional FO training 
regarding the disability interview process to further assist the DDSs 
in their determination process. 

GAO Comments:

1. In response to SSA's comments, we de-emphasized our discussion of 
functional criteria in the listings by simply identifying it as one of 
many reasons for the decline in allowance rates at step three. Although 
we agree that functional elements have not been added to the medical 
criteria for the IBD listings, we believe that the addition of 
functional criteria to some listings is relevant to our study because 
they provide perspective on whether claimants with IBD are treated 
differently than claimants with other impairments. We also clarified 
our text in the "Conclusions" section to discuss the decline in 
allowances based on meeting or equaling the medical criteria in the 
listings (i.e., step three allowances), instead of allowances based on 
medical criteria. In any case, we commend SSA for contracting with the 
Institute of Medicine of the National Academy of Sciences to study 
issues related to the listings.

2. We agree that a shift away from medical criteria toward more 
functional criteria is only one of many possible explanations for the 
downward trend of allowances at step three for DI claimants, and may 
not specifically apply to claimants with IBD. As discussed in comment 
1, we modified our text in the body of the report and in the 
"Conclusions" section to place less emphasis on this particular 
explanation.

3. We revised the text in the "Conclusions" section to state more 
specifically what our analysis of 2003 decisions found.

4. We agree that, of those allowed, a larger number of allowances are 
made at the initial level for claimants with IBD as well as for other 
claimants, and we added a footnote to the body of the report confirming 
this. However, SSA's point that most allowances occur at the initial 
level does not detract from the importance of our discussion of 
relative rates. The low rate of allowances at the DDS level means that 
a large majority of claimants were initially denied, many of whom 
likely did not appeal their initial decision. Our analysis does not 
allow us to say whether the high allowance rate at the hearings level 
is a function of the merit of the appealed cases or, if more of those 
denied claims had been appealed to the hearings level (where more than 
half of claims are allowed), a larger number of claims might have been 
allowed at the hearings level, and therefore claims allowed by the DDS 
would be a smaller percentage of the total number of allowed claims. 
Thus, reporting only the total number of claims allowed at the 
different decision-making levels may not accurately represent the 
situation.

5. See comment 3. We did not revise the "Conclusions" section further 
because we believe the report sufficiently identifies a number of 
legitimate reasons that may explain some of the differences in 
allowance rates between adjudication levels.

FOOTNOTES

[1] The Research Review Act of 2004 also mandated that GAO report on 
the Medicare and Medicaid coverage standards for certain therapies used 
by patients with IBD.

[2] See appendix I for a detailed description of the methods we used to 
analyze 2003 data.

[3] SSA also manages Title XVI of the Social Security Act, which 
created the Supplemental Security Income (SSI) program in 1972. SSI is 
a means-tested, income assistance program that provides monthly 
payments to adults or children who are blind or who have other 
disabilities and whose income and assets fall below a certain level.

[4] The SSI program uses the same definition of disability as the DI 
program.

[5] For all disability claims, claimants must fill out the disability 
application form and the adult disability report.

[6] In September 2003, SSA's Commissioner proposed eliminating 
reconsideration and the Appeals Council as part of a large set of 
revisions to the disability decision-making process. 

[7] Under the current process, if the claimant is not satisfied with 
the ALJ's decision, he or she may request a review of the decision by 
SSA's Appeals Council, which is the final administrative appeal within 
SSA. If the Appeals Council denies the request for review or the 
claimant is not otherwise satisfied with the Appeals Council's 
decision, the claimant may appeal to a federal district court. The 
claimant can continue legal appeals to the U.S. Circuit Court of 
Appeals, and ultimately to the Supreme Court of the United States.

[8] The sequential claims evaluation process applies equally to DI and 
SSI claims.

[9] The 2005 substantial gainful activity (SGA) level for claimants who 
are not blind is $830; SGA for blind claimants is $1,380.

[10] Social Security Advisory Board, Charting the Future of Social 
Security's Disability Programs: The Need for Fundamental Change 
(Washington, D.C.: January 2001).

[11] To calculate overall allowance rates, we divided the number of 
allowances at all levels (initial, reconsideration, and hearings) by 
the number of decisions at all levels.

[12] The number of impairments we included in this analysis (218, 
including the two IBD impairments, ulcerative colitis, and Crohn's 
disease) was determined by identifying all primary impairments listed 
in the 2003 decisions, minus those involving fewer than 100 decisions 
in 2003.

[13] Although the allowance rate at the DDS is lower than the rate at 
the hearings level, this does not mean that fewer people were allowed 
at the DDS than at the hearings level. In fact, of the 2,257 claimants 
with IBD who were allowed at either level in 2003, 55 percent (or 
1,241) were allowed at the DDS level. Similarly, of those claimants 
with other impairments who were allowed at either level, 76 percent 
(584,613) were allowed at the DDS level.

[14] GAO, SSA and VA Disability Programs: Re-Examination of Disability 
Criteria Needed to Help Ensure Program Integrity, GAO-02-597 
(Washington, D.C.: Aug. 9, 2002).

[15] GAO, SSA Disability Decision Making: Additional Steps Needed to 
Ensure Accuracy and Fairness of Decisions at the Hearings Level, GAO-04-
14 (Washington, D.C.: Nov. 12, 2003).

[16] Secretary of Health and Human Services, Implementation of Section 
304 (g) Public Law 96-265, Social Security Disability Amendments of 
1980, the Bellmon Report (Washington, D.C.: January1982).

[17] GAO, Social Security Disability: SSA Must Hold Itself Accountable 
for Continued Improvement in Decision-making, GAO/HEHS-97-102 
(Washington, D.C.: Aug. 12, 1997).

[18] GAO, Social Security Administration: More Effort Needed to Assess 
Consistency of Disability Decisions, GAO-04-656 (Washington, D.C.: July 
2, 2004).

[19] Social Security Advisory Board, Disability Decision Making: 
Selected Aspects of Disability Decision Making (Washington, D.C.: 
January 2001).

[20] GAO-04-656.

[21] Some of these DI decisions involved a concurrent claim, that is, 
the claimant filed for DI and SSI concurrently and a decision of 
disability is the same for both programs.

[22] Although most step one denials were made at an SSA field office 
and were not included in our analysis, a small number of claims (1,563, 
or less than 0.1 percent) were denied at step one at the DDS and 
hearings levels.

[23] GAO, SSA's Disability Programs: Improvements Could Increase the 
Usefulness of Electronic Data for Program Oversight, GAO-05-100R 
(Washington, D.C.: Dec. 10, 2004).

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