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entitled 'Social Security Disability: Improved Processes for Planning 
and Conducting Demonstrations May Help SSA More Effectively Use Its 
Demonstration Authority' which was released on November 04, 2004.

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Report to the Committee on Finance, U.S. Senate, and the Committee on 
Ways and Means, House of Representatives:

United States Government Accountability Office:

GAO:

November 2004:

SOCIAL SECURITY DISABILITY:

Improved Processes for Planning and Conducting Demonstrations May Help 
SSA More Effectively Use Its Demonstration Authority:

GAO-05-19:

GAO Highlights:

Highlights of GAO-05-19, a report to Committee on Finance, U.S. 
Senate, and the Committee on Ways and Means, House of Representatives:

Why GAO Did This Study:

Since 1980, the Congress has required the Social Security 
Administration (SSA) to conduct demonstration projects to test the 
effectiveness of possible program changes that could encourage 
individuals to return to work and decrease their dependence on 
Disability Insurance (DI) benefits. To conduct these demonstrations, 
the Congress authorized SSA, on a temporary basis, to waive certain DI 
and Medicare program rules and to use Social Security Trust Funds. The 
Congress required GAO to review SSA’s use of its DI demonstration 
authority and to make a recommendation as to whether this authority 
should be made permanent.

What GAO Found:

SSA has not used its demonstration authority to extensively evaluate a 
wide range of DI policy areas dealing with return to work. Despite 
being given the authority to assess a broad range of policy 
alternatives, SSA has, until very recently, focused its demonstration 
efforts mostly on a relatively narrow set of policy issues—those 
dealing with the provision of vocational rehabilitation and employment 
services. SSA’s recently proposed or initiated demonstrations have 
begun to address a broader range of policy issues, such as provisions 
to reduce, rather than terminate, benefits based on earnings above a 
certain level. However, the agency has no systematic processes or 
mechanisms for ensuring that it is adequately identifying and 
prioritizing those issues that could best be addressed through use of 
its demonstration authority. For example, the agency has not developed 
a formal demonstration research agenda explicitly identifying its broad 
vision for using its DI demonstration authority and explaining how 
ongoing or proposed demonstration projects support achievement of the 
agency’s goals and objectives. 

SSA’s demonstration projects have had little impact on the agency’s and 
the Congress’ consideration of DI policy issues. This is due, in part, 
to methodological limitations that have prevented SSA from producing 
project results that are useful for reliably assessing DI policy 
alternatives. In addition, SSA has not established a formal process 
for ensuring that its demonstration results are fully considered for 
potential policy implications. For example, SSA does not maintain a 
comprehensive record of its demonstration results that could be used 
to build a body of knowledge for informing policy decisions and 
planning future research. Furthermore, SSA’s reporting of demonstration 
project results has been insufficient in ensuring that the Congress is 
fully apprised of these results and their policy implications.

What GAO Recommends:

GAO recommends that SSA develop a formal agenda for its demonstrations, 
establish an expert panel to guide the design and implementation of 
demonstrations, and establish formal processes to ensure full 
consideration of demonstration results. GAO also identifies several 
matters for the Congress to consider, including continuation of DI 
demonstration authority on a temporary basis, establishment of 
additional reporting requirements for demonstrations, and clearer 
specification of the methodological and evaluation requirements for 
demonstrations.

In its comments on a draft of this report, SSA agreed with GAO’s 
recommendations.

www.gao.gov/cgi-bin/getrpt?GAO-05-19.

To view the full product, including the scope and methodology, click on 
the link above. For more information, contact Robert E. Robertson at 
(202) 512-7215 or RobertsonR@gao.gov.

[End of section]

Contents:

Letter:

Results in Brief:

Background:

SSA Has Not Used Its Demonstration Authority to Evaluate a Wide Range 
of DI Return-to-Work Policy Issues:

SSA's Demonstration Projects Have Had Little Influence on Consideration 
of DI Policy Changes:

Conclusions:

Recommendations:

Matters for Congressional Consideration:

Agency Comments and Our Evaluation:

Appendix I: Scope and Methodology:

Appendix II: Comments from the Social Security Administration:

Appendix III: GAO Contacts and Staff Acknowledgments:

GAO Contacts:

Staff Acknowledgments:

Tables:

Table 1: Completed or Nearly Completed Projects Conducted under SSA's 
DI Demonstration Authority:

Table 2: Recently Proposed or Initiated Projects Conducted under SSA's 
DI Demonstration Authority:

Abbreviations:

DI: Disability Insurance:

HHS: Department of Health and Human Services:

OASDI: Old-Age and Survivors Insurance and Disability Insurance:

OPDR: Office of Program Development and Research:

RDP: Research Demonstration Program:

RFP: request for proposal:

RSVP: Referral System for Vocational Rehabilitation Providers:

SGA: substantial gainful activity:

SPI: State Partnership Initiative:

SSI: Supplemental Security Income:

SSA: Social Security Administration:

SSAB: Social Security Advisory Board:

United States Government Accountability Office:

Washington, DC 20548:

November 4, 2004:

The Honorable Charles E. Grassley: 
Chairman: 
The Honorable Max Baucus: 
Ranking Minority Member: 
Committee on Finance: 
U. S. Senate:

The Honorable William M. Thomas:
Chairman: 
The Honorable Charles B. Rangel: 
Ranking Minority Member: 
Committee on Ways and Means: 
House of Representatives:

From 1982 to 2002, the number of disabled workers receiving benefits 
under the Disability Insurance (DI) program doubled from 2.6 million to 
5.5 million, while payments quadrupled from about $14.8 billion to $60 
billion. Although technological and medical advances, along with social 
changes, have increased the potential for some people with disabilities 
to participate in the labor force, less than 1 percent of DI 
beneficiaries leave the rolls each year because they have reentered the 
workforce. The enactment of various DI work incentives that are 
intended to encourage beneficiaries to work--and, potentially, to leave 
the rolls--has also had little discernible impact on beneficiaries' 
success in returning to the workforce. This low rate of return to work, 
coupled with escalating growth in DI program enrollment and benefit 
costs over the past few decades, threatens to exhaust the DI Trust Fund 
by 2029. Yet relatively little is known about the factors that help 
beneficiaries overcome employment challenges and disincentives and that 
inhibit them from achieving an earnings level that leads to self-
sufficiency. GAO has designated federal disability programs as a high-
risk area, in part because of the significant growth in the DI program 
and the long-standing challenges in devising effective return-to-work 
policies.[Footnote 1]

In response to these challenges, the Congress has, since 1980, required 
the Social Security Administration (SSA) to conduct demonstration 
projects to test the effectiveness of possible program changes that 
could encourage individuals to return to work and decrease their 
dependence on DI benefits. In fostering return to work, these 
demonstrations and the program changes they test are intended to 
produce savings in the Trust Funds or improve DI program 
administration. To achieve these objectives, SSA's DI demonstration 
authority contains several key features that provide SSA with a 
potentially valuable tool for assessing the effectiveness of policy 
alternatives. One of these features is SSA's authority to waive certain 
DI and Medicare program rules. For example, when conducting 
demonstrations, SSA is permitted to exempt certain beneficiaries from 
requirements that workers with disabilities earn below a certain amount 
to remain eligible for DI benefits or that they wait 24 months to 
become eligible for Medicare benefits. Another key aspect of SSA's 
demonstration authority is the requirement that DI demonstration 
projects be of sufficient scope and conducted on a wide enough scale to 
ensure a thorough evaluation and results that are applicable to the DI 
program as a whole. In addition, the legislation authorized SSA to use 
DI Trust Fund and Old-Age and Survivors Insurance Trust Fund monies to 
pay for the demonstrations and required SSA to periodically report to 
the Congress on its demonstration activities, providing, when 
appropriate, recommendations for legislative or administrative 
changes. The Congress initially granted SSA this demonstration 
authority for a 5-year period but subsequently renewed the authority 
several times, most recently extending it through 2005.

The Ticket to Work and Work Incentives Improvement Act (P.L. 106-170) 
mandated that GAO review SSA's use of its DI demonstration authority 
and provide a recommendation as to whether SSA should be given this 
authority permanently. To develop a basis on which to make this 
recommendation, we examined the extent to which (1) SSA has used the 
demonstration authority to test a range of program changes and (2) 
SSA's demonstration authority has been used to inform policy decisions. 
In conducting our examination, we reviewed relevant federal statutes 
and regulations governing DI demonstration activities and interviewed 
SSA officials with current and prior responsibility for demonstration 
projects. We also reviewed documents related to SSA's planning, 
implementation, and evaluation of demonstration projects, including 
agency reports to the Congress, public notices, and reports analyzing 
project results. In addition, we examined other reviews of SSA's 
demonstrations (including prior GAO and Inspector General reports) and 
interviewed officials from disability research, advisory, and advocacy 
organizations. Furthermore, we obtained information on research and 
demonstrations conducted by other federal agencies. We performed our 
work in accordance with generally accepted government auditing 
standards between October 2003 and August 2004. For more details about 
our scope and methodology, see appendix I.

Results in Brief:

SSA has not used its demonstration authority to extensively evaluate a 
wide range of DI policy areas dealing with return to work. Despite 
being given the authority to assess a broad range of policy 
alternatives, SSA has, until very recently, focused its demonstration 
efforts mostly on a relatively narrow set of policy issues--those 
dealing with the provision of vocational rehabilitation and employment 
services. But even in that policy area, SSA's use of DI demonstration 
authority has not been comprehensive and, therefore, did not 
extensively address key policy issues that the agency is currently 
grappling with in its efforts to implement a new approach for providing 
return-to-work assistance. SSA's recently proposed or initiated 
demonstrations have begun to address a broader range of policy issues, 
such as provisions to reduce, rather than terminate, benefits based on 
earnings above a certain level. However, the agency has no systematic 
processes or mechanisms for ensuring that it is adequately identifying 
and prioritizing those issues that could best be addressed through use 
of its demonstration authority. For example, the agency has not 
developed a formal demonstration research agenda explicitly identifying 
its broad vision for using its DI demonstration authority and 
explaining how ongoing or proposed demonstration projects support 
achievement of the agency's goals and objectives.

SSA's demonstration projects have had little impact on the agency's and 
the Congress' consideration of DI policy issues. This is due, in part, 
to methodological limitations that have prevented SSA from producing 
project results that are useful for reliably assessing DI policy 
alternatives. In addition, SSA has not established a formal process for 
ensuring that its demonstration results are fully considered for 
potential policy implications. For example, SSA does not maintain a 
comprehensive record of its demonstration results that could be used to 
build a body of knowledge for informing policy decisions and planning 
future research. Furthermore, SSA's reporting of demonstration project 
results has been insufficient in ensuring that the Congress is fully 
apprised of these results and their policy implications.

This report contains recommendations to help ensure the effectiveness 
of SSA's DI demonstration efforts. It also identifies several matters 
that the Congress may wish to consider, including continuation of SSA's 
demonstration authority on a temporary basis. In its comments on a 
draft of this report, SSA agreed with our recommendations. SSA also 
agreed that it has not, in the past, used its demonstration authority 
to extensively evaluate DI policy, but it noted that its recently 
initiated or proposed demonstrations will play a vital role in testing 
program and policy changes. SSA's comments appear in appendix II.

Background:

Established in 1956, DI is an insurance program that provides monthly 
cash benefits to workers who are unable to work because of severe long-
term disability. Workers who have worked long enough and recently 
enough are insured for coverage under the DI program. To meet the 
definition of disability under the DI program, an individual must have 
a medically determinable physical or mental impairment that (1) has 
lasted or is expected to last at least 1 year or to result in death and 
(2) prevents the individual from engaging in substantial gainful 
activity (SGA). Individuals are considered to be engaged in SGA if they 
have countable earnings above a certain dollar level.[Footnote 2] Once 
a person is on the disability rolls, benefits continue until (1) the 
beneficiary dies, (2) the beneficiary becomes eligible for Social 
Security retirement benefits at full retirement age,[Footnote 3] (3) 
SSA determines that the beneficiary is no longer eligible for benefits 
because his or her earned income exceeds the SGA level, or (4) SSA 
decides that the beneficiary's medical condition has improved to the 
point that he or she is no longer considered disabled. In 2002, SSA 
paid about $60 billion in DI cash benefits to 5.5 million disabled 
workers,[Footnote 4] with average monthly benefits amounting to $834 
per person.[Footnote 5] In addition to receiving cash assistance, 
beneficiaries automatically qualify for Medicare after 24 months of DI 
entitlement.

During the 1970s, as the number of disability awards increased 
significantly and resulted in substantial cost increases for the DI 
program, the Congress became concerned about the growth of the DI 
program and program rules that provided disincentives to returning to 
work. To encourage DI beneficiaries to return to work--and, 
potentially, to leave the benefit rolls--the Congress has, over the 
years, enacted legislation providing various work incentives. Such 
incentives include a trial work period during which beneficiaries may 
earn any amount for 9 months within a 60-month period and still receive 
full cash and medical benefits and continued Medicare coverage that 
allows beneficiaries to maintain eligibility for Medicare for at least 
39 months following a trial work period as long as medical disability 
continues.

In an effort to further address these issues, the Congress, in 1980, 
required SSA to conduct demonstration projects[Footnote 6] to evaluate 
the effectiveness of policy alternatives that could encourage DI 
beneficiaries to reenter the workforce.[Footnote 7] A key aspect of 
this demonstration authority is SSA's ability to waive DI and Medicare 
program rules to the extent needed in conducting these projects. The 
legislation granting DI demonstration authority also identified a 
variety of policy alternatives for SSA to consider testing, including 
(1) alternative ways of treating DI beneficiaries' work-related 
activity such as methods allowing for a reduction in benefits based on 
earnings and (2) modifications in other rules, such as the trial work 
period and Medicare eligibility waiting period, that may serve as 
obstacles to DI beneficiaries returning to work. In addition, this 
legislation identified several requirements pertaining to the design 
and evaluation of DI demonstration projects. In particular, these 
projects were required to be of sufficient scope and carried out on a 
wide enough scale to permit a thorough evaluation of the policy 
alternatives studied such that the results would be generally 
applicable to the operation of the DI program. The law additionally 
required SSA to submit reports to the Congress announcing the 
initiation of DI demonstration projects as well as periodic reports 
describing the status of these projects and a final report on all 
projects carried out under the demonstration authority. SSA was 
directed to make recommendations, when appropriate, for legislative or 
administrative changes in its reports to the Congress.

Another important aspect of SSA's DI demonstration authority is that 
unlike other SSA research activities, which are funded through 
congressional appropriations, these projects can be paid for with DI 
Trust Fund and Old-Age and Survivors Insurance Trust Fund monies. 
Therefore, SSA is not required to obtain congressional approval for DI 
demonstration expenditures, although it is required to receive approval 
from the Office of Management and Budget for an annual apportionment of 
Trust Funds for these demonstrations.

SSA's DI demonstration authority has always been granted on a temporary 
basis and therefore has been subject to periodic review and renewal by 
the Congress.[Footnote 8] After initially granting this authority for a 
5-year period, the Congress subsequently renewed it several times, in 
1986, 1989, 1994, 1999, and 2004. The renewal of SSA's authority has 
sometimes been delayed so that SSA has, on several occasions, gone 
without DI demonstration authority. For example, after its 
demonstration authority expired in June 1996, SSA was not again granted 
DI demonstration authority until December 1999. Most recently, the 
Congress extended this demonstration authority through December 
2005.[Footnote 9]

In addition to granting this general DI demonstration authority, the 
Congress may enact legislative mandates for SSA to conduct specific DI 
demonstration projects. For example, the Ticket to Work and Work 
Incentives Improvement Act of 1999 required SSA to conduct a 
demonstration to assess the effectiveness of a benefit offset program 
under which DI benefits are reduced by $1 for every $2 in earnings 
(above a certain level) by a beneficiary. SSA's authority to conduct 
this demonstration is similar in some respects to the authority it has 
under its general DI demonstration statute. For instance, the statute 
allows waiver of DI and Medicare program provisions to carry out this 
benefit offset demonstration. However, some differences exist between 
the two authorities. In particular, the benefit offset demonstration 
authority provides a more detailed and comprehensive list of 
demonstration objectives for SSA to fulfill than does SSA's general 
authority. For example, the benefit offset demonstration authority 
lists six "matters to be determined," which include assessments of 
project costs; savings to the Trust Funds; and project effects on 
employment outcomes such as wages, occupations, benefits, and hours 
worked.

Regardless of the authority under which they are carried out, 
demonstration projects examining the impact of social programs are 
inherently complex and difficult to conduct. Measuring outcomes, 
ensuring the consistency and quality of data collected at various 
sites, establishing a causal connection between outcomes and program 
activities, and separating out the influence of extraneous factors 
raise formidable technical and logistical problems. Thus, these 
projects generally require a planned study and considerable time and 
expense. Adding to these complexities are other administrative or 
statutory requirements affecting SSA's DI demonstrations. For example, 
SSA's policy is that its demonstration projects must not make those who 
participate in the project worse off, which could limit the specific 
types of policy alternatives the agency can study or the methods used 
to study such alternatives.

Although the legislation granting DI demonstration authority does not 
prescribe the use of particular methodological approaches, SSA has 
repeatedly recognized that the law's general requirements for 
demonstration evaluations require SSA to conduct these projects in a 
rigorous manner that provides the agency with a reliable basis for 
making policy recommendations.[Footnote 10] Rigorous methods are 
required to estimate the net impact of a tested disability policy 
option because many other factors, such as the economy, can influence 
whether a beneficiary returns to work. In an August 2002 report to the 
SSA Commissioner, an SSA advisory panel stated that it is widely agreed 
that experimental designs,[Footnote 11] "when feasible from operational 
and budgetary perspectives and when they can be conducted without 
serious threats to their validity, are the best methodology for 
determining the effects of changes in government programs."[Footnote 
12] In addition, SSA officials and other researchers have noted the 
advantages of experimental designs in providing policymakers with more 
clear-cut results that are less subject to debate than results derived 
from other methods.[Footnote 13] However, when experimental designs are 
not feasible or desirable, the use of quasi-experimental 
designs[Footnote 14] offers a reasonably rigorous evaluation 
alternative that may, under certain circumstances, offer advantages 
over experimental designs.[Footnote 15]

Other factors may also limit the rigor of DI demonstrations, including 
insufficient sample sizes, inconsistency in demonstration design or 
implementation across multiple project sites, and deficiencies in data 
collection. Such design, implementation, and evaluation weaknesses may 
hamper SSA's use of project results as a basis for making policy 
recommendations because they limit the agency's ability to (1) control 
for factors external to the demonstration, (2) generalize demonstration 
results to a wider population of DI beneficiaries, and (3) isolate the 
effects of specific policy interventions from the overall effects 
produced by a demonstration.

The Office of Program Development and Research (OPDR) is the entity 
within SSA that develops and implements demonstration projects for the 
DI and Supplemental Security Income (SSI) Programs.[Footnote 16] OPDR 
program and research staff--sometimes with the assistance of outside 
research organizations--identifies the broad outlines and requirements 
of disability program demonstration projects, including the basic 
objectives, scope, and methodological standards for these projects. SSA 
then issues formal notices requesting public or private sector 
organizations to submit offers to conduct the demonstration projects, 
which may include development of a detailed design plan, provision of 
technical support, collection of project data, or evaluation of project 
results. On the basis of SSA's review of submitted proposals and bids, 
the agency may enter into grants, cooperative agreements, or 
contractual arrangements with one or more organizations to carry out 
demonstration projects.[Footnote 17] For example, a single 
demonstration may involve cooperative agreements with states to design 
and implement projects as well as contracts with one or more research 
institutions to provide technical assistance to the states and evaluate 
demonstration results. Project managers in OPDR have the primary 
responsibility for overseeing demonstration projects to ensure that 
they meet SSA's technical and programmatic requirements. OPDR 
collaborates with SSA's Office of Acquisition and Grants in issuing 
formal project notices and solicitations and, subsequently, in 
overseeing grant or contract performance.

SSA Has Not Used Its Demonstration Authority to Evaluate a Wide Range 
of DI Return-to-Work Policy Issues:

SSA has not used its demonstration authority to extensively evaluate a 
wide range of DI policy areas dealing with return to work. Until very 
recently, SSA has focused its demonstration efforts primarily on a 
relatively narrow set of policy issues dealing with the provision of 
vocational rehabilitation and employment services, despite being given 
the authority to assess a much broader range of policy alternatives. 
Even in the area of vocational rehabilitation and employment issues, 
SSA's use of DI demonstration authority has not been comprehensive and, 
therefore, did not extensively address key policy issues that the 
agency is currently grappling with under its Ticket to Work program. 
SSA's recently initiated or proposed demonstrations have begun to 
address a broader range of policy issues. However, the agency has no 
systematic processes or mechanisms for ensuring that it is adequately 
identifying and prioritizing those issues that could best be addressed 
through use of its demonstration authority.

SSA Has Not Used Its Demonstration Authority Extensively:

The DI demonstration projects that SSA has conducted since 1980 have 
not extensively addressed a wide range of return-to-work policy issues. 
Since first being granted DI demonstration authority 24 years ago, SSA 
has used this authority to complete four projects, with another project 
nearing completion.[Footnote 18] Total costs for these projects amount 
to at least $107 million, of which about $42 million was paid for from 
the Old-Age and Survivors Insurance and Disability Insurance (OASDI) 
Trust Funds.[Footnote 19]

The legislation granting DI demonstration authority to SSA provided the 
agency with an opportunity to examine a broad set of return-to-work 
policy alternatives and even identified some specific alternatives for 
SSA to consider studying, including (1) reducing, rather than 
terminating, benefits based on earnings; (2) lengthening the trial work 
period; (3) decreasing the 24-month waiting period for Medicare 
benefits; (4) altering program administration; (5) earlier referral of 
beneficiaries for rehabilitation; and (6) using employers and others to 
stimulate new forms of vocational rehabilitation. The projects SSA has 
conducted thus far have focused predominantly on the latter category of 
issues involving vocational rehabilitation and have focused to a lesser 
extent--or not at all--on other key policy issues affecting return to 
work (see table 1). More specifically, examination of policy 
alternatives dealing with the provision of vocational rehabilitation 
and employment services has been the primary objective of four of the 
five completed or nearly completed demonstrations. Although two of 
these projects also examined other DI return-to-work policy issues--
such as the possible effects of changes in program work incentives and 
alterations in the provision of medical benefits--they did so to only a 
limited extent. None of the projects looked at other potentially 
significant DI policy issues, such as the possibility of changing SSA's 
benefit structure to allow for a reduction in benefits, rather than a 
complete cutoff of benefits, based on earnings.

Table 1: Completed or Nearly Completed Projects Conducted under SSA's 
DI Demonstration Authority:

Project: Research Demonstration Program (RDP); 
Policy issues studied: Mostly focused on provision of vocational 
rehabilitation and employment services but also touched on other policy 
issues such as changes in SSA work incentives; 
Year initiated: 1987; 
Year completed: Most projects under the RDP appear to have been 
completed by the early 1990s.; 
Cost: $32 million, about half of which was funded through the Trust 
Funds, with the other half coming from appropriations.

Project: Pain Assessment Instruments Development Project; 
Policy issues studied: Focused on the testing of pain assessment 
questionnaires for determining the impact of pain on an applicant's or 
beneficiary's ability to return to work; 
Year initiated: 1990; 
Year completed: 1994; 
Cost: A $3.8 million contract was awarded by SSA on this project, but 
it is unclear if there were any additional project costs. All of the 
costs of this project appear to have been funded through the Trust 
Funds..

Project: Project Network; 
Policy issues studied: Focused on provision of vocational 
rehabilitation and employment services; 
Year initiated: 1991; 
Year completed: 1999; 
Cost: $25.4 million, about $13.7 million of it funded through the Trust 
Funds, with the remainder coming from appropriations.

Project: Project Referral System for Vocational Rehabilitation 
Providers (Project RSVP); 
Policy issues studied: Focused on provision of vocational 
rehabilitation; 
Year initiated: 1997; 
Year completed: No identifiable completion date; 
project was eventually superseded by the Ticket to Work program; 
Cost: No information available.

Project: State Partnership Initiative (SPI); 
Policy issues studied: Mostly focused on provision of vocational 
rehabilitation and employment services but also touched on other policy 
issues such as increased availability of health insurance; 
Year initiated: 1998; 
Year completed: Expected completion in 2006; 
Cost: Projected to cost $46.1 million, about $8.7 million of it funded 
through the Trust Funds and $37.4 million coming from appropriations. 

Source: GAO analysis of SSA data.

Note: Most of these projects involved both DI and SSI beneficiaries and 
therefore were jointly conducted and funded under SSA's DI 
demonstration authority and its SSI demonstration authority.

[End of table]

Furthermore, SSA has not used its DI demonstration authority to 
comprehensively examine issues involving vocational rehabilitation, 
including key policy issues with which the agency is currently 
grappling. For example, SSA did not extensively test key elements of 
what eventually became the Ticket to Work program.[Footnote 20] 
Although the ticket program was not formally proposed by SSA in a 
legislative package until 1997, as early as 1989, in an annual report 
to the Congress on SSA's demonstration activities, SSA noted that among 
its ideas for improving SSA's ability to assist beneficiaries in 
returning to work was a voucher program that could be used to pay for 
vocational rehabilitation services from private providers. SSA told the 
Congress that such a program, as well as other possible policy changes, 
would need to be thoroughly tested as a prerequisite to developing a 
new nationwide program. However, only one project completed under SSA's 
DI demonstration authority--Project Referral System for Vocational 
Rehabilitation Providers (Project RSVP), initiated in 1997--addressed 
an issue directly relevant to the ticket program, namely, the use of a 
contractor to perform certain administrative functions for an expanded 
vocational rehabilitation referral and reimbursement program. But our 
review of project documentation and our discussions with SSA officials 
indicate that Project RSVP was more of an effort to make an operational 
change in the way SSA managed its vocational rehabilitation program 
than a study to evaluate the advantages and disadvantages of such a 
change. In fact, we could not identify any end product or final results 
for this project.

SSA also made another attempt, ultimately unsuccessful, to directly 
address issues related to establishment of a ticket program. In the 
Omnibus Budget Reconciliation Act of 1990, the Congress mandated that 
SSA use its DI demonstration authority to assess the advantages and 
disadvantages of permitting DI beneficiaries to select from among both 
public and private vocational rehabilitation providers. But in January 
1993, SSA reported to the Congress that it would be unable to conduct 
this demonstration because of an insufficient number of providers 
willing to participate in the project. SSA explained that the 
performance-based reimbursement provisions of the proposed project 
appeared to be the reason why providers were reluctant to 
participate.[Footnote 21] Despite the Congress' expressed interest in 
these issues, SSA did not attempt to identify alternative ways to carry 
out such a demonstration. In particular, given that SSA remained very 
interested in the expanded use of private rehabilitation providers for 
the DI program, the difficulties encountered in recruiting providers 
for the demonstration should have highlighted the need for SSA to 
further study the issue of provider reimbursement before proceeding 
with any policy initiatives in this area. SSA's current Deputy 
Commissioner for Disability and Income Security Programs told us that 
if SSA had used its demonstration authority to study these types of 
issues in the 1990s, SSA might have been able to identify and possibly 
resolve these issues then rather than struggling to do so now. In 
addition, such information could have been helpful in the Congress' 
consideration of the ticket legislation's merits as it deliberated 
whether to enact this program.

SSA's Recently Proposed Demonstrations Address a Broader Range of 
Policy Issues:

In contrast to the completed and nearly completed demonstration 
projects, SSA's more recent projects, which are generally in the early 
planning or proposal stages, represent a much more wide-ranging set of 
demonstrations (see table 2). For example, the projects, as currently 
described, will deal with a variety of issues such as early provision 
of cash and medical benefits and a change in the benefit payment 
structure to allow a benefit offset for beneficiaries earning above the 
SGA level. This more comprehensive approach to demonstrations is due in 
part to legislative changes. For example, the Ticket to Work Act 
mandated that SSA conduct a benefit offset demonstration and also 
permitted SSA, for the first time, to conduct demonstrations involving 
DI applicants, thereby allowing SSA to test ideas such as early 
provision of cash and medical benefits and vocational rehabilitation 
services to individuals who have not yet entered the disability rolls. 
In addition, SSA has recently placed a high priority on conducting 
disability demonstration projects that examine the key issues affecting 
beneficiaries' return to work. This priority was reflected in the SSA 
Commissioner's September 25, 2003, testimony before the House Committee 
on Ways and Means, Subcommittee on Social Security, in which she 
announced several new demonstrations as part of a broader strategy to 
improve the DI and SSI programs. SSA estimates that these recently 
proposed and initiated projects will cost about $357 million, $293 
million of which will be paid for from the OASDI Trust Funds.

Table 2: Recently Proposed or Initiated Projects Conducted under SSA's 
DI Demonstration Authority:

Project: DI Benefit Offset; 
Policy issues studied: Focused on assessment of a benefit offset that 
would allow beneficiaries to retain their eligibility for benefits when 
earning above the SGA level while offsetting these benefits by $1 for 
every $2 in earnings; 
it would also assess various employment support interventions in 
conjunction with the offset; 
Actual/planned year of initiation: 2004; 
Expected project duration: 6 years; 
Expected cost: $106 million, all from the Trust Funds.

Project: Early Intervention; 
Policy issues studied: Focused on provision of cash and medical 
benefits and employment supports to DI applicants; 
Actual/planned year of initiation: 2005; 
Expected project duration: Pilot is expected to last 4 years; 
duration of full demonstration (if conducted) is unknown; 
Expected cost: $34.4 million, of which $28.4 million is expected to be 
funded through the Trust Funds.

Project: Interim Medical Benefits; 
Policy issues studied: Focused on provision of medical benefits to DI
applicants with no medical insurance whose condition is likely to 
improve with treatment; 
Actual/planned year of initiation: Project in preliminary stage; 
too early to determine start date; 
Expected project duration: 6 years; 
Expected cost: $59.8 million, of which $54.9 million is expected to be 
funded through the Trust Funds; 
(These costs apply to both the Interim and Ongoing Medical Benefits 
demonstrations).

Project: Ongoing Medical Benefits; 
Policy issues studied: Focused on provision of medical benefits to DI 
beneficiaries who want to work but have no affordable access to health 
insurance; 
Actual/planned year of initiation: Project in preliminary stage; 
too early to determine start date, although SSA has proposed starting a 
pilot project in 2005; 
Expected project duration: Project in preliminary stage; 
too early to determine duration; 
Expected cost: See above.

Project: Mental Health Treatment Study; 
Policy issues studied: Focused on provision of outpatient mental health 
treatment and vocational rehabilitation services to DI beneficiaries 
for whom a mental health disorder is the primary diagnosis; 
Actual/planned year of initiation: Project in preliminary stage; 
too early to determine start date; 
Expected project duration: 6 years; 
Expected cost: $66.9 million, of which $59.7 million is expected to be 
funded through the Trust Funds.

Project: Temporary Allowance; 
Policy issues studied: Focused on provision of immediate cash and 
medical benefits to DI applicants likely to benefit from aggressive 
medical care; 
Actual/planned year of initiation: Project in preliminary stage; 
too early to determine start date; 
Expected project duration: 5 years; 
Expected cost: $32 million, all from the Trust Funds.

Project: Predictive Modeling[A]; 
Policy issues studied: Focused on analyses to develop screening tools 
that will be used to identify candidates for several of SSA's other 
demonstration projects; 
Actual/planned year of initiation: 2004; 
Expected project duration: 2 years; 
Expected cost: $9 million, of which $7.2 million is expected to be 
funded through the Trust Funds.

Project: Youth Transition Process Demonstration[B]; 
Policy issues studied: Focused on states' development of integrated 
service delivery systems to improve employment outcomes for youth 
transitioning to adulthood; 
Actual/planned year of initiation: 2003; 
Expected project duration: 6 years; 
Expected cost: $48.5 million, of which $4.9 million is expected to be 
funded through the Trust Funds. 

Source: GAO analysis of SSA data.

Note: Some of these projects are expected to involve both DI and SSI 
beneficiaries and therefore will be jointly conducted and funded under 
SSA's DI demonstration authority and its SSI demonstration authority.

[A] This is not a demonstration project designed to assess policy 
alternatives. Instead, this project is intended to develop a specific 
product for use in certain other SSA demonstrations.

[B] This project is focused on the SSI program. However, SSI 
beneficiaries who are dually eligible for DI benefits may also 
participate in this demonstration.

[End of table]

SSA Lacks a Formal Process for Establishing a Demonstration Research 
Agenda:

Despite SSA's recent broadening of the scope of its projects, the 
agency does not have in place any systematic processes for identifying 
and assessing potential issues that could be well suited for study 
under SSA's demonstration project authority. Therefore, there is no 
assurance that the agency will, in future demonstration efforts, 
maintain its current focus on a broad array of return-to-work policy 
issues. Our discussions with SSA officials and review of a study 
examining earlier demonstration efforts indicate that the agency's 
agenda for demonstration projects is subject to significant change over 
time resulting, in part, from changes in executive branch and SSA 
leadership and senior management. The effects of such changes may 
include termination of projects or significant delays and modifications 
in their planning and implementation. For example, in its 1994 report 
examining SSA's Research Demonstration Program, the agency's Inspector 
General noted that changes in SSA leadership had disrupted the 
accomplishment of RDP objectives. The disability research and advisory 
officials we spoke with also indicated that SSA's project priorities 
and decisions are significantly influenced by larger political and 
organizational changes, which may prevent SSA from focusing on long-
term research objectives. One advisory official noted that these 
difficulties in long-term planning have occurred despite the fact that 
the Congress--in making SSA an independent agency and establishing a 6-
year term for the SSA Commissioner--intended that SSA would be better 
able to engage in the type of long-range planning required to address 
its program needs.

SSA's approach for identifying and prioritizing demonstrations has 
varied through the years. Soon after being granted DI demonstration 
authority in 1980, SSA developed a detailed demonstration research plan 
to directly address the policy issues identified in SSA's authorizing 
legislation. However, our discussions with SSA officials and review of 
internal agency documents indicate that the plan was never acted upon 
because of competing organizational priorities and concerns over the 
potential cost of the demonstrations and possible technical 
limitations, such as the adequacy of systems support. Consequently, as 
its DI demonstration authority was due to expire in 1985, SSA had not 
used it to conduct any demonstrations. In the second half of the 1980s, 
after its demonstration authority was renewed, SSA changed course. 
Partly on the basis of solicitation of ideas from the public, SSA 
identified priority areas dealing mostly with vocational rehabilitation 
and employment services issues for which it would issue grants to 
public and private organizations to conduct demonstrations. The 
specific priority areas identified changed from year to year as SSA 
attempted to stimulate, test, and coordinate effective approaches 
toward employment assistance.

In its required 1991 annual report to the Congress on its DI 
demonstration activities, SSA said that it was proceeding with broader 
testing of key elements of a comprehensive employment and 
rehabilitation system. But our review of agency documents and 
discussions with SSA officials indicate that SSA has not developed a 
formal, comprehensive, long-term agenda for conducting DI demonstration 
projects. Senior SSA officials told us that the agency's current 
demonstration project decisions are, to some extent, based on 
discussions with outside research, advocacy, and other groups. But SSA 
has no formal mechanisms and requirements in place to ensure that the 
agency obtains such input and to decide how such input should be 
factored in with other considerations in determining the agency's 
demonstration priorities.

The need for explicit planning concerning SSA research, including 
demonstrations, has been identified in past reviews of SSA's disability 
programs. For example, in 1998, the Social Security Advisory Board 
(SSAB) noted the need for SSA to develop a comprehensive, long-range 
research and program evaluation plan for DI and SSI that would guide 
the agency's research and define priorities.[Footnote 22] SSAB also 
said that SSA's research plan should reflect broad consultation with 
the Congress, other agencies, SSAB, and others and recommended the 
establishment of a permanent research advisory panel to advise in the 
development of a long-range plan. In a 1996 report on SSA's disability 
programs, the National Academy of Social Insurance noted the "dearth of 
rigorous research on the disability benefit programs" since the 1980s 
and said that SSA needed a comprehensive, long-range research program 
to address this deficiency.[Footnote 23] In addition, officials from 
disability research, advisory, and advocacy groups told us that they 
believe the establishment of a formal research agenda or an advisory 
panel with regard to demonstration projects would be helpful in 
ensuring that SSA adequately identifies its demonstration priorities 
and maintains its commitment to these priorities even in the face of 
political or administrative changes.

SSA's Demonstration Projects Have Had Little Influence on Consideration 
of DI Policy Changes:

SSA's demonstration projects have had little influence on the agency's 
and the Congress' consideration of DI policy issues. This is due, in 
part, to methodological limitations that have prevented SSA from 
producing project results that are useful for reliably assessing DI 
policy alternatives. In addition, SSA lacks a formal process for fully 
considering the potential policy implications of its demonstration 
results. Furthermore, SSA's reports on demonstration projects have not 
fully apprised the Congress of project results and their policy 
implications.

Limitations in Project Design, Implementation, and Evaluation Lessen 
Usefulness of Demonstration Results:

The demonstration projects SSA has conducted under its DI demonstration 
authority have generally not been designed, implemented, or evaluated 
in a rigorous enough manner to allow the agency to reliably assess the 
advantages and disadvantages of specific policy alternatives. While 
SSA's major DI demonstrations have varied significantly in their 
methodological rigor, all of them have experienced at least some 
significant methodological limitations.[Footnote 24] For example, 
SSA's first major DI demonstration, the Research Demonstration Program, 
was characterized by a number of fundamental design and evaluation 
flaws such as the limited scope and small sample sizes of the RDP 
projects and the limited use of control groups. In its 1994 report on 
the RDP, the Department of Health and Human Services' (HHS) Inspector 
General noted that because of such limitations, "grantees were unable 
to conduct research that SSA deemed necessary for definitive tests of 
alternatives to help beneficiaries obtain work."[Footnote 25] In 
addition, SSA did not develop a plan for evaluating the overall RDP 
results as part of its initial project design. In a required 1994 
annual report to the Congress on its demonstration activities, SSA 
acknowledged that the lack of a rigorous project design and the 
omission of a strong evaluation component limited the ways in which the 
project results could be generalized. But SSA also described a number 
of "observations" that resulted from the RDP and noted that this 
project had helped to identify the agency's future demonstration 
priorities. However, given the significant limitations of the RDP, it 
is unlikely that its results could have provided a reliable basis for 
effectively establishing such priorities.

In its next major DI demonstration effort, Project Network, which was 
initiated as the RDP projects were being completed, SSA avoided many of 
the major shortcomings of the RDP. For example, Project Network was 
rigorously designed, using an experimental approach based on the random 
assignment of beneficiaries to treatment and control groups. As a 
result, this project produced some reasonably clear results, which SSA 
thoroughly evaluated in an effort to assess the overall impact of the 
tested policy alternatives. Despite its generally rigorous design, 
Project Network also had some limitations that may have, to some 
extent, limited its usefulness for policy consideration. For example, 
in examining the effects of a case management approach for providing 
vocational rehabilitation services, Project Network used four different 
service delivery models.[Footnote 26] Although the Project Network 
evaluation provided information on the overall effects of a case 
management approach, it did not provide a basis for reliably assessing 
and comparing the separate effects of the four models even though such 
an assessment may have provided useful information for policy 
considerations. In addition, Project Network did not produce results 
that could be generalized to the larger population of beneficiaries, 
which, in turn, limited SSA's ability to assess whether the tested 
policy should be implemented on a nationwide basis.[Footnote 27]

As was the case with Project Network, SSA has made a significant effort 
under its State Partnership Initiative demonstration to avoid some of 
the problems encountered under the RDP. For example, SSA contracted 
with two research institutions to design an evaluation plan for the 
demonstration and to provide assistance with technical issues and data 
collection to the various states conducting this demonstration. Our 
discussions with SSA and contractor officials who have been involved in 
this demonstration as well as our own review of SPI project documents 
indicate that the efforts of the contractors appear to have introduced 
a certain degree of rigor in the design, implementation, and, 
potentially, evaluation of this demonstration.[Footnote 28] For 
example, SSA's contractors have indicated that the SPI "core 
evaluation" will likely produce useful results regarding the effects on 
beneficiary employment of the overall package of policy alternatives 
tested under the demonstration. But despite these efforts, the SPI 
design also has a number of limitations that could substantially reduce 
the usefulness of its results for evaluating the effects of the 
demonstration's individual policy alternatives. For example, SSA gave 
each of the 12 participating states significant discretion in designing 
and conducting projects, which resulted in 12 distinct state projects. 
Each project tested different combinations of policy alternatives, 
applied different research methods to study these alternatives, and 
used varying approaches to select beneficiaries for participation in 
the project. SSA officials told us that such differences across 
projects make it unlikely that SPI will produce final results that 
allow for reliable evaluations of specific policy alternatives on a 
national level. SSA and one of its SPI contractors have also noted 
other potential limitations in the design and implementation of SPI, 
such as problems with the quality of states' data collection, that may 
detract from SSA's ability to evaluate specific policy 
alternatives.[Footnote 29]

SSA officials currently responsible for planning and conducting DI 
demonstrations acknowledged that the agency's past demonstrations have 
generally not provided useful information for policy making largely 
because of the limited rigor with which these projects were conducted. 
However, they emphasized that the agency has, over the past couple of 
years, placed a new emphasis on ensuring that DI demonstrations are 
rigorously designed so that the results can be used to effectively 
evaluate specific policy options and develop recommendations. In 
particular, the officials noted the importance of using, whenever 
feasible, an experimental approach in its demonstration projects and of 
ensuring that demonstration results can be generalized to the larger 
population of DI beneficiaries.[Footnote 30] The officials also 
emphasized the need for SSA to hire additional staff with the expertise 
needed to carry out methodologically rigorous demonstration projects.

Aside from the SPI demonstration, all of SSA's other current DI 
demonstrations are in the early design phase or have been proposed only 
recently. Therefore, we were not able to assess the methodological 
rigor of these projects. However, our review of SSA's request for 
proposal (RFP) for its Benefit Offset demonstration indicates that SSA 
is making a serious effort to comprehensively and rigorously study this 
policy issue. For example, SSA has proposed using an experimental 
design with random assignment to treatment and control groups. 
Nevertheless, the scope and complexity of SSA's proposal suggest that 
this will be a very challenging project for SSA to carry out 
successfully, and that the agency will need to ensure that its project 
design avoids some of the pitfalls that have limited the usefulness of 
past demonstrations, such as insufficient sample size and lack of 
uniformity in tested interventions across sites.

SSA Does Not Ensure That Project Results Are Adequately Considered and 
Communicated:

SSA does not have procedures or processes in place to ensure that 
project results--regardless of any limitations that they may have--are 
fully considered by senior officials within the agency for their policy 
implications or their implications for future SSA research and 
demonstrations. Without such processes, projects that begin with the 
support of senior managers under one administration may not receive 
adequate attention from a new group of senior managers under a future 
administration. Our discussions with current and former SSA officials 
and with officials from disability research, advocacy, and advisory 
organizations indicate that such shifting priorities have been the norm 
for SSA's DI demonstration projects. For example, several of these 
officials told us that when Project Network was completed in 1999, its 
results were not formally reviewed and considered by senior SSA 
managers, in part because of the changes in presidential 
administrations and in senior agency leadership that had occurred since 
the start of the project. Officials from one of the groups we spoke 
with told us that SSA's consideration of project results could be 
improved by the establishment of a panel to review project results and 
explore their policy implications.

An additional factor that could limit SSA's consideration of 
demonstration results is the lack of an adequate historical record--
reflecting the outcomes and the problems or issues encountered--of the 
various projects that the agency has conducted under its demonstration 
authority.[Footnote 31] SSA has not maintained a formal record of its 
disability demonstration project activities and results, so basic 
information on these projects--such as project notices, design 
documents, and evaluation documents--is in some cases no longer 
available. As a result, information on some projects can be obtained 
only by relying on the recollection of SSA employees who were around 
when the study was conducted. While formal document retention 
requirements may not dictate that SSA maintain such information, 
several SSA officials told us that the agency would benefit from an 
institutional record of demonstration activity. According to these 
officials, such a record would constitute a body of knowledge that the 
agency should be building to improve DI return-to-work policies. This 
becomes even more important in light of the expected retirement of a 
large percentage of SSA staff during this decade.[Footnote 32]

In addition to having shortcomings in its consideration of 
demonstration results, SSA has not sufficiently communicated the status 
and results of its demonstration projects to the Congress. Although SSA 
had been required to issue various reports to the Congress regarding 
its DI demonstration projects, it has not always produced such reports. 
For example, although SSA was required to submit final reports on the 
use of its demonstration authority in 1985, 1990, 1993, and 1996, the 
only final report that SSA submitted was in 1996. In addition, SSA did 
not submit annual reports on its demonstration activities in 7 of the 
16 years in which these reports were required. Furthermore, when these 
reports have been produced, they have not provided all of the 
information needed to fully inform the Congress of demonstration 
activities and results. For example, our review of these reports 
indicates that they have frequently lacked key information such as a 
discussion of a project's potential policy implications, its 
limitations, and the costs of conducting the project.

Conclusions:

In allowing SSA to waive program provisions and use OASDI Trust Fund 
dollars, SSA's DI demonstration authority provides the agency with a 
special, and potentially very valuable, means of studying policy 
alternatives to improve the agency's return-to-work programs. SSA has 
spent tens of millions of dollars from the OASDI Trust Funds to conduct 
these projects--in addition to tens of millions of dollars from SSA's 
general appropriations--and expects to spend hundreds of millions more 
within the next 10 years. While these amounts may be small as a 
percentage of the total Trust Funds, they nevertheless represent a 
substantial use of increasingly limited federal resources. After having 
this authority for more than two decades, SSA has yet to use it to 
propose or assess major policy options that could result in savings to 
the Trust Funds. Because SSA's use of its DI demonstration authority 
has yet to achieve the Congress' intended results--and because SSA is 
permitted to draw on increasingly limited Trust Funds to conduct these 
demonstrations--we believe it is important for the Congress to maintain 
close oversight of SSA's use of this authority. We also believe that 
such oversight would be a greater challenge if the Congress were to 
grant this demonstration authority on a permanent basis.

As the DI Trust Fund approaches exhaustion, the need for programmatic 
improvements becomes greater and greater. As part of a broader effort 
to address this need, SSA has recently initiated or proposed a number 
of DI demonstration projects that, according to SSA officials, are 
geared toward producing useful and methodologically sound results. Such 
results could provide an important basis for SSA to address some of the 
long-standing issues that have led GAO to identify federal disability 
programs as a high-risk area. However, the challenges SSA has 
historically faced in conducting demonstration projects and the 
potential for changing priorities to adversely affect long-range 
research plans suggests that, in the long run, SSA may be unable to 
fulfill these demonstration goals. This is especially likely if SSA 
continues its informal approach to prioritizing and planning 
demonstrations and assessing their results. Without more formal 
mechanisms for establishing its commitment to effective and thorough DI 
demonstrations--including the submission of regular reports to the 
Congress on the results and implications of its demonstration projects-
-SSA will be unable to ensure that the extensive amount of time, 
effort, and funding devoted to these demonstrations is well spent.

Recommendations:

To help ensure the effectiveness of SSA's DI demonstration projects, we 
recommend that the Commissioner of Social Security take the following 
actions:

* Develop a formal agenda reflecting the agency's long-term plans and 
priorities for conducting DI demonstration projects. In establishing 
this agenda, SSA should consult broadly with key internal and external 
stakeholders, including SSA advisory groups, disability researchers, 
and the Congress.

* Establish an expert panel to review and provide regular input on the 
design and implementation of demonstration projects from the early 
stages of a project through its final evaluation. Such a panel should 
include SSA's key research personnel as well as outside disability 
experts and researchers. SSA should establish guidelines to ensure that 
its project plans and activities adequately address the issues or 
concerns raised by the panel or provide a clear rationale for not 
addressing such issues.

* Establish formal processes to ensure that, at the conclusion of each 
demonstration project, SSA fully considers and assesses the policy 
implications of its demonstration results and clearly communicates 
SSA's assessment to the Congress. Such processes should ensure that SSA 
consults sufficiently with internal and external experts in its review 
of demonstration project results and that SSA issues a report to the 
Congress clearly identifying (1) major project outcomes, (2) major 
project limitations, (3) total project costs, (4) any policy options or 
recommendations, (5) expected costs and benefits of proposed options or 
recommendations, and (6) any further research or other actions needed 
to clarify or support the project's results. Another key aspect of such 
formal processes should be a requirement that SSA maintain a 
comprehensive record of DI demonstration projects. This record would 
help SSA in establishing an empirically based body of knowledge 
regarding possible return-to-work strategies and in deriving the full 
value of its substantial investments in demonstration projects.

Matters for Congressional Consideration:

To facilitate close congressional oversight and provide greater 
assurance that SSA will make effective use of its DI demonstration 
authority, the Congress should consider the following actions:

* Continue to provide DI demonstration authority to SSA on a temporary 
basis but allow SSA to complete all projects that have been initiated 
prior to expiration of this authority. This would provide SSA with 
greater certainty and stability in its efforts to plan and conduct 
demonstration projects while preserving the Congress' ability to 
periodically reassess and reconsider SSA's overall use of DI 
demonstration authority.

* Require that SSA periodically provide a comprehensive report to the 
Congress summarizing the results and policy implications of all of its 
DI demonstration projects. The due date for this report could either 
coincide with the expiration of SSA's DI demonstration authority or, if 
this authority is made permanent or extended for a period greater than 
5 years, be set for every 5 years. Such reports could serve as a basis 
for the Congress' assessment of SSA's use of its demonstration 
authority and its consideration of whether this authority should be 
renewed.

* Establish reporting requirements that more clearly specify what SSA 
is expected to communicate to the Congress in its annual reports on DI 
demonstrations. Among such requirements could be a description of all 
SSA projects that the SSA Commissioner is considering conducting or is 
conducting some preliminary work on. For each demonstration project 
that the agency is planning or conducting, SSA should provide clear 
information on the projects' specific objectives, potential costs, key 
milestone dates (e.g., actual or expected dates for RFP, award of 
contracts or grants, start of project operations, completion of 
operations, completion of analysis, and final report), potential 
obstacles to project completion, and the types of policy alternatives 
that SSA might consider pursuing depending on the results of the 
demonstration. This would provide the Congress with a more complete 
understanding of the direction and progress of SSA in its efforts to 
fulfill its DI demonstration requirements.

* More clearly specify the methodological and evaluation requirements 
for DI demonstrations to better ensure that such projects are designed 
in the most rigorous manner possible and that their results are useful 
for answering specific policy questions and for making, where 
appropriate, well-supported policy recommendations. Such requirements 
should not be entirely prescriptive given the need for SSA to have 
sufficient flexibility for choosing the right methodological approach 
based on the specific circumstances and objectives of a particular 
demonstration project. However, the requirements could call for SSA to 
choose, to the extent practical and feasible, the most rigorous methods 
possible in conducting these demonstrations. Whatever methods are 
ultimately selected, SSA should be sure that the methods used will 
allow for a reliable assessment of the potential effect on the DI 
program of the individual policy alternatives being studied. Finally, 
SSA's legislative requirements could be revised to include a more 
explicit list of project objectives--such as assessments of specific 
employment outcomes, costs and benefits, and Trust Fund savings--
similar to the language that was included under Sections 302(b)(1) and 
(b)(2) of the Ticket to Work and Work Incentives Improvement Act.

Agency Comments and Our Evaluation:

In commenting on a draft of this report, SSA agreed with our 
recommendations. SSA agreed that in the past it has not used its 
demonstration authority to extensively evaluate DI policy but noted 
that its recently initiated or proposed demonstrations will play a 
vital role in testing program and policy changes. SSA also agreed that 
the use of experts in developing demonstration projects is very useful 
and commented that it has used the expertise of particular individuals 
on an ad hoc basis and plans to continue to use the advice and 
recommendations of experts in the development of future demonstrations. 
Finally, SSA agreed that a central source of information regarding the 
results and policy implications of disability demonstrations needs to 
be established and stated that it planned to fully analyze the results 
of demonstration projects to inform DI policy decisions. SSA's comments 
appear in appendix II.

Copies of this report are being sent to the Commissioner of SSA, 
appropriate congressional committees, and other interested parties. The 
report is also available at no charge on GAO's Web site at http://
www.gao.gov. If you have any questions about this report, please 
contact me at (202) 512-7215. Other contacts and staff acknowledgments 
are listed in appendix III.

Signed by: 

Robert E. Robertson: 
Director, Education, Workforce, and Income Security Issues:

[End of section]

Appendix I: Scope and Methodology:

To address the mandated objectives, we reviewed legislation authorizing 
the Social Security Administration (SSA) to conduct Disability 
Insurance (DI) demonstration projects, Congressional reports related to 
this legislation, and SSA regulations governing DI demonstration 
activities. We also examined internal SSA memorandums and planning 
documents discussing proposals to conduct demonstration projects and 
the nature, purpose, requirements, and distinguishing features of SSA's 
demonstration authority. We interviewed a wide range of current and 
former SSA officials who have had involvement in or responsibility for 
conducting disability program demonstration projects, including 
officials from the Office of Disability and Income Security Programs 
(ODISP) and two offices operating under ODISP--the Office of Program 
Development and Research and the Office of Employment Support Programs-
-as well as officials from the Office of the Chief Actuary, the Office 
of Acquisition and Grants, the Office of Budget, the Office of 
Strategic Management, and the Office of Research, Evaluation, and 
Statistics. We also interviewed officials from disability research, 
advisory, and advocacy organizations. In addition, we examined other 
reviews of SSA's disability demonstration and research programs, 
including prior GAO and Inspector General reports and reports from 
disability research and advisory groups. We also reviewed SSA budget 
documents identifying agency spending on disability program 
demonstrations and SSA testimony describing agency priorities related 
to the DI program in general and demonstration projects in particular. 
In addition, we examined SSA's strategic plan, annual performance 
plans, and annual accountability reports.

To obtain detailed information on SSA's DI demonstration projects, we 
reviewed various documents related to SSA's design, implementation, and 
evaluation of demonstration projects including agency reports to the 
Congress; public notifications of demonstration projects issued in the 
Federal Register; contract, grant, and cooperative agreement 
solicitation and award notices issued in the Federal Register or in the 
Commerce Business Daily; and project reports submitted to SSA by 
grantees or contractors, including project design and evaluation 
documents. We used information from these sources to identify key 
characteristics and outcomes of each project, including its broad 
goals, specific study objectives, types of program waivers applied, 
methodology, actual or expected costs, funding sources, major project 
milestones including actual or expected initiation and completion 
dates, project duration, involvement of outside contractors and 
grantees, key project strengths and limitations, and final project 
results, including any recommendations that may have been made. The 
type and extent of information we obtained for each demonstration 
project varied widely, in large part because SSA has not maintained 
comprehensive documentation on its prior demonstrations. In addition, 
documentation on SSA's more recent demonstrations was very limited 
given that these projects are in the early planning and design stages.

To provide a broader context for understanding SSA's use of its 
demonstration authority, we reviewed other federal agencies' 
legislative authorities for conducting demonstration and research 
activities. We also examined reports from GAO and other organizations 
that evaluated demonstration and research projects conducted by other 
federal agencies or that identified key evaluation and methodological 
issues related to such projects.

We performed our work at SSA headquarters in Baltimore, Maryland, and 
at various locations in Washington, D.C. We conducted our work between 
October 2003 and August 2004 in accordance with generally accepted 
government auditing standards.

[End of section]

Appendix II: Comments from the Social Security Administration:

SOCIAL SECURITY:

The Commissioner: 

October 21,2004:

Mr. Robert E. Robertson: 
Director, Education, Workforce and Income Security Issues:
U.S. Government Accountability Office: 
Room 5-T-57:
441 G Street, NW: 
Washington, D.C. 20548:

Dear Mr. Robertson:

Thank you for the opportunity to review and comment on the draft report 
"Social Security Disability: Improved Processes for Planning and 
Conducting Demonstrations May Help SSA More Effectively Use Its 
Demonstration Authority" (GAO-05-19). Our comments on the report are 
enclosed.

If you have any questions, please have your staff contact Candace 
Skumik, Director, Audit Management and Liaison Staff, at (410) 965-
4636.

Sincerely,

Signed by: 

Jo Anne B. Barnhart: 

Enclosures (2):

COMMENTS ON THE GOVENMENT ACCOUNTABILITY OFFICE (GAO) DRAFT REPORT 
"SOCIAL SECURITY DISABILITY: IMPROVED PROCESSES FOR PLANNING AND 
CONDUCTING DEMONSTRATIONS MAY HELP THE SOCIAL SECURITY ADMINISTRATION 
MORE EFFECTIVELY USE ITS DEMONSTRATION AUTHORITY" (GAO-05-19):

We appreciate the opportunity to comment on the draft report concerning 
the Social Security Administration's (SSA) use of demonstration 
authority granted by Congress to test the overall effectiveness of 
possible program changes that could encourage individuals to return to 
work and decrease their dependence on Disability Insurance (DI) 
benefits.

We agree with your finding that, in the past, we have not used the 
demonstration authority to extensively evaluate DI policy. We are 
pleased that the report acknowledges recent changes and that "... SSA's 
recently proposed or initiated demonstrations have begun to address a 
broader range of policy issues..." We believe that SSA has made several 
key changes in policy that will address this issue.

As the Commissioner's new approach to the disability determination 
process is developed, our disability demonstrations will play a vital 
role in testing program and policy changes that will enable SSA to 
provide the appropriate supports and services to applicants and 
beneficiaries that will best serve their individual needs. The ultimate 
goal of these disability demonstration projects is to identify 
individuals, as early as possible, who could retain or attain 
employment with adequate supports or services.

As decisions and plans are made regarding the implementation of the 
Commissioner's new approach, which emphasizes return to work at each 
step of the disability determination process, SSA is coordinating the 
implementation with the activities constituting our comprehensive Work 
Opportunity Vision. SSA's Work Opportunity Vision includes the 
disability demonstration projects, plans to expand and simplify work 
incentives, and our proposed improvements to the Ticket Program. These 
coordinated activities will have a combined impact on streamlining the 
return to work process and assisting our applicants and beneficiaries 
in maximizing their economic self-sufficiency through employment.

We also agree with your recommendations and are particularly pleased 
that the report recognizes our increased effort to address disability 
program improvements, as evidenced by our recently initiated and 
proposed disability demonstration projects. The outcomes of these 
projects should go a long way towards the removal of our disability 
program from the Federal disability programs high-risk list.

Our responses to the specific recommendations are provided below:

Recommendation 1:

SSA should develop a formal agenda reflecting the Agency's long-term 
plans and priorities for conducting DI demonstration projects. In 
establishing this agenda, SSA should consult broadly with key internal 
and external stakeholders, including SSA advisory groups, disability 
researchers, and Congress.

Response:

We agree and already have begun work on a formal disability research 
agenda that would answer key questions associated with disability 
policy making. We see the research conducted through our disability 
demonstration projects as an integral part of the management of SSA's 
programs and as a key component of our Work Opportunity Vision and the 
Commissioner's new approach to the disability determination process. We 
anticipate the results from our research will inform DI policy 
decisions and may direct future studies on particular issues or 
populations. We plan to consult with interested groups and individuals 
as development of the agenda proceeds.

Recommendation 2:

SSA should establish an expert panel to review and provide regular 
input on the design and implementation of demonstration projects from 
the early stages of a project through its final evaluation. Such a 
panel should include SSA's key research personnel as well as outside 
disability experts and researchers. SSA should establish guidelines to 
ensure that its project plans and activities adequately address the 
issues or concerns raised by the panel or provide a clear rationale for 
not addressing such issues.

Response:

We agree that the use of experts in developing demonstration projects 
is very useful. However, we have used the expertise of particular 
individuals on mad hoc basis. This allows us to tap individuals with 
particular expertise for project development, but also allows those 
experts to participate in some of the contracts. To eliminate conflicts 
of interest as we develop these projects, experts we utilize in the 
project development must forgo participation in the project. While we 
recognize the value of this expert advice, we do not want to limit the 
use of experts in the implementation of these disability 
demonstrations. We plan to continue to use the advice and 
recommendations of experts in the development of future demonstrations.

Recommendation 3:

SSA should establish formal processes to ensure that, at the conclusion 
of each demonstration project, SSA fully considers and assesses the 
policy implications of its demonstration results and clearly 
communicates SSA's assessment to Congress. Such processes should ensure 
that SSA consults sufficiently with internal and external experts in 
its review of demonstration results and that SSA issues a report to 
Congress clearly identifying: major project outcomes; major project 
limitations; total project costs; any policy options or 
recommendations; expected costs and benefits of proposed options or 
recommendations; and any further research or other actions needed to 
clarify or support the project's results. Another key aspect of such 
formal processes should be a requirement that SSA maintain a 
comprehensive record of DI demonstration projects. This record would 
help SSA in establishing an empirically based body of knowledge 
regarding the possible return to work strategies and to derive the 
full value of its substantial investments in demonstration projects.

Response:

We agree that a central source of information regarding the results and 
policy implications of disability demonstrations needs to be 
established. Our intent and plan is to fully analyze the results of 
demonstration projects to infonn DI policy decisions, including the 
implementation of the Commissioner's new approach to the disability 
determination process. We also agree that we should communicate the 
results to Congress. 

[End of section]

Appendix III: GAO Contacts and Staff Acknowledgments:

GAO Contacts:

Shelia D. Drake, Assistant Director, (202) 512-7172 Mark Trapani, 
Analyst-in-Charge, (202) 512-6513:

Staff Acknowledgments:

The following individuals also made important contributions to this 
report: Jacquelyn D. Stewart, Erin M. Godtland, Corinna A. Nicolaou, 
Daniel A. Schwimer, Ronald La Due Lake, Michele C. Fejfar.

FOOTNOTES

[1] GAO identifies federal programs and operations that are high-risk 
because of their greater vulnerability to fraud, waste, abuse, and 
mismanagement. GAO has also increasingly used its high-risk designation 
to draw attention to the challenges faced by government programs and 
operations in need of broad-based transformation. See GAO, High-Risk 
Series: An Update, GAO-03-119 (Washington, D.C.: January 2003) and GAO, 
Major Management Challenges and Program Risks: Social Security 
Administration, GAO-03-117 (Washington, D.C.: January 2003).

[2] For 2004, SSA considers countable earnings above $810 a month to be 
substantial gainful activity for persons who are not blind and $1,350 a 
month for persons who are blind.

[3] The full retirement age is the earliest age at which an unreduced 
retirement benefit is payable. The age for full retirement benefits is 
scheduled to rise gradually from age 65 to 67.

[4] In 2002, the DI program also paid about $6 billion in cash benefits 
to about 1.7 million spouses and children of disabled workers. DI cash 
benefits are paid from the Federal Disability Insurance Trust Fund. 
This trust fund is funded through payroll deductions paid by employers 
and workers.

[5] For disabled and blind individuals who have low income and limited 
resources, SSA provides cash benefits under the Supplemental Security 
Income (SSI) program. Although both the DI and the SSI programs use the 
same definition of disability, SSI has no prior work requirement. In 
2002, SSA paid about $26 billion in SSI benefits to about 5.5 million 
people with disabilities, of whom 3.9 million were working age adults 
aged 18 to 64. The average monthly federal SSI cash benefit amounted to 
about $398 per person. In 2002, about 1.2 million DI beneficiaries were 
dually eligible for SSI benefits because of the low level of their 
income and resources.

[6] This DI demonstration authority was provided under Section 505(a) 
of the Social Security Disability Amendments of 1980 (Pub. L. No. 96-
265). Section 505(b) of this act amended Section 1110 of the Social 
Security Act to provide SSA with similar demonstration authority for 
the SSI program, including authority to waive SSI program rules. 
However, unlike the DI demonstrations, SSI demonstration projects were 
to be funded from congressional appropriations. Although SSA's DI and 
SSI demonstration authorities are separate and somewhat distinct, the 
agency's disability demonstration projects often involve both DI and 
SSI beneficiaries and applicants. When a demonstration is conducted 
under both the DI and SSI demonstration authorities, funding for the 
project is also split between trust fund (i.e., DI) and appropriated 
(i.e., SSI) sources.

[7] In a report discussing federal evaluation activities, GAO defined 
demonstration projects as "those that aim to provide evidence of the 
feasibility or effectiveness of a new approach or practice." See GAO, 
Program Evaluation: Improving the Flow of Information to Congress, GAO-
PEMD-95-1 (Washington, D.C.: January 30, 1995). This definition is 
consistent with the purpose of SSA's DI demonstration projects, as 
spelled out in legislation.

[8] Although SSA has temporary authority for DI demonstrations, it has 
permanent authority to conduct SSI demonstrations.

[9] In addition to extending the authority to initiate DI demonstration 
projects through 2005, Pub. L. No. 108-203 would also allow DI 
demonstrations that SSA has initiated on or before December 17, 2005, 
to be completed thereafter.

[10] The results of a rigorous demonstration may lead SSA to recommend 
adoption of a particular policy option or, alternatively, to recommend 
that such an option not be pursued. Also, to the extent that the 
results of a demonstration are not definitive enough to make such 
policy recommendations, SSA may instead propose that additional 
research be conducted to further assess policy alternatives.

[11] Experimental designs involve random assignment of study 
participants to either a treatment group or a control group. The 
treatment group is subjected to the new program or policy, and the 
control group is not. The strength of the experimental design is in its 
assurance that those who experience the treatment are like, in all 
important ways, those who do not experience the treatment except for 
the difference in receiving the treatment itself. 

[12] Ticket to Work and Work Incentives Advisory Panel, Advice Report 
to the Commissioner of Social Security: Statutory Requirements and 
Design Issues Related to SSDI $1 for $2 Benefit Offset Research, p. 12 
(Washington, D.C.: August 2002).

[13] For example, in a 1997 publication examining welfare reform 
evaluations, Besharov and others state that with experimental designs 
"Policymakers can then focus on the implications of findings, rather 
than 'become entangled in a protracted and often inconclusive 
scientific debate about whether the findings of a particular study are 
statistically valid.'" See Douglas J. Besharov, Peter Germanis, and 
Peter H. Rossi, Evaluating Welfare Reform, A Guide for Scholars and 
Practitioners, the University of Maryland, School of Public Affairs, 
1997, p. 42.

[14] Alternative methods involving quasi-experimental designs do not 
involve the use of randomized control groups. Instead, such designs 
rely on the nonrandom selection of a comparison group of 
nonparticipants with characteristics similar to those of study 
participants.

[15] Although experimental methods are generally preferred, they may 
not always be feasible or may not necessarily provide the optimal 
approach for conducting a demonstration because of various 
implementation or ethical considerations. Quasi-experimental methods 
may instead be preferable or may need to be used in conjunction with 
experimental methods to produce the most rigorous results. For 
instance, quasi-experimental methods may be preferred when there is a 
chance that a randomized approach will not remain intact, such as when 
participants in the control group are likely to receive elements of the 
intervention.

[16] OPDR is one of several organizational components under SSA's 
Office of Disability and Income Security Programs (ODISP), which has 
responsibility for carrying out DI and SSI program functions. Prior to 
OPDR's creation in November 2002, responsibility for disability 
demonstration projects was shared by components within ODISP and SSA's 
Office of Policy. 

[17] While grants and cooperative agreements are closely related to 
each other, cooperative agreements generally allow for greater federal 
agency involvement in the funded activities. Contracts generally 
provide federal agencies with more control over funded activities than 
either grants or cooperative agreements.

[18] SSA also initiated three other projects under its DI demonstration 
authority, which were subsequently terminated. In addition, SSA has 
sometimes conducted demonstration projects involving DI beneficiaries 
under other research authorities (rather than under its DI 
demonstration authority). Although our discussion in this report 
focuses only on those projects that were conducted under SSA's DI 
demonstration authority, our review of these other demonstration 
projects suggests that our findings would apply similarly to them.

[19] We were not able to obtain complete cost figures for these 
projects because of the limited information maintained by SSA. Because 
most of these projects involved both DI and SSI beneficiaries, they 
were funded through the use of OASDI Trust Funds (under SSA's DI 
demonstration authority) and general appropriations (as provided under 
SSA's SSI demonstration authority).

[20] Under this program, beneficiaries are issued a "ticket," or 
voucher, which they can use to obtain vocational rehabilitation, 
employment, or other return-to-work services from an approved public or 
private provider of their choice.

[21] These provisions permitted reimbursement only for rehabilitation 
services which result in a beneficiary's performance of substantial 
gainful activity for a continuous period of 9 months. The provisions 
were identical to those in place for reimbursing state vocational 
rehabilitation agencies.

[22] Social Security Advisory Board, Strengthening Social Security 
Research: The Responsibilities of the Social Security Administration, 
p. 6-7 (Washington, D.C.: January 1998).

[23] National Academy of Social Insurance, The Environment of 
Disability Income Policy: Programs, People, History, and Context, p. 
108-109 (Washington, D.C.: 1996).

[24] Our discussion in this section is based on our review of SSA's 
three major DI demonstrations conducted since 1980--the Research 
Demonstration Program, Project Network, and the State Partnership 
Initiative. For the two other projects SSA has conducted under its DI 
demonstration authority--the Pain Assessment Instruments Development 
Project and Project RSVP--SSA was unable to provide, and we were unable 
to otherwise identify, any documentation or information other than 
relatively brief project descriptions provided in SSA reports or 
notices. However, these project descriptions as well as information 
obtained in discussions with SSA officials who were knowledgeable of 
these projects indicate that these projects were not research efforts 
designed to assess particular return-to-work policy options but instead 
represented attempts by SSA to implement operational changes in the DI 
program.

[25] Department of Health and Human Services, Office of Inspector 
General, Impact of SSA's Disability Research Demonstration Program, 
OEI-04-91-01660, pp. 5 (Washington, D.C.: September 1994).

[26] The researchers involved in Project Network described case 
management as "a tool for facilitating employment-oriented 
interventions customized for each individual, given that persons with 
disabilities face a range of barriers to work." The four models for 
providing case management services used in Project Network included one 
that was operated by a private contractor and another operated by state 
vocational rehabilitation agencies, as well as two other models that 
were operated by SSA but differed in terms of the intensity of services 
offered. 

[27] Because participation in the demonstration was voluntary, the 
project's results could not be generalized to the broader population of 
beneficiaries, most of whom did not volunteer. For example, the 
project's volunteers were generally healthier and had fewer work 
limitations than those who did not volunteer. 

[28] The SPI demonstration is still in process and is expected to be 
completed in 2006.

[29] Because the SPI demonstration is not yet complete, it is possible 
that SSA and its contractors will take additional steps to address 
these limitations. However, information obtained through our 
discussions with SSA and SPI contractor officials provided little 
indication that such problems were likely to be addressed. 

[30] The officials noted that being able to generalize to the larger DI 
population does not necessarily mean that a policy tested through a 
demonstration has to be applicable to all or most DI beneficiaries, but 
could instead be applicable to a subgroup of beneficiaries. For 
example, an SSA demonstration might evaluate the costs and benefits of 
a policy option that is targeted toward beneficiaries with mental 
impairments. In this case, SSA would want to be assured that the 
project's results are generalizable to the larger population of 
beneficiaries with mental illnesses, but it would not expect 
generalizability to other DI beneficiaries (i.e., those with other 
types of impairments).

[31] Although our focus in this report is on DI demonstrations, during 
the course of our work, we had also requested information on SSI 
demonstrations and were similarly unable to identify a historical 
record at SSA.

[32] In its strategic plan for fiscal years 2003-2008, SSA said that 
during this decade, over 28,000 of its federal employees will retire 
and another 10,000 will leave the agency for other reasons, which 
represents approximately 59 percent of the agency's current workforce.

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